A Special Thank You to Our Supporters

Travis Roy Foundation
Craig H Neilsen Foundation
Lenny Zakim Fund
Cummings Foundation

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info@sciboston.org                    www.sciboston.org

 
SCIBoston is feeling very grateful to Allie Skelley for his recent efforts to raise over $7000 for SCIboston's Travis Roy Legacy Grant Program. Allie has been a long standing supporter of SCIboston and is an SCI survivor himself.  Allie has participated in many fundraising efforts in the past for the Travis Roy Foundation. Last year he stand-up paddle boarded around Aquidneck Island for his first SCIboston fundraiser.
 
This year Allie reached out to SCIboston and said he would like to try (and I quote ) " to hike 24 of New Hampshire's hardest hikes as fast as possible".  Allie gave himself 11 days to complete this task and not surprisingly, he was able to achieve his goal! All in the name of raising money for SCIboston.  Allie chose these specific numbers because of their significance to Travis Roy. Travis wore #24 on his hockey jersey and was on the ice for his first NCAA hockey game for 11 seconds before sustaining a life altering spinal cord injury. 
 
SCIboston would like to say a heartfelt THANK YOU to Allie for his fundraising efforts this year! Allie's efforts will have a significant impact on our community by contributing to our quality of life grant program. 
 
You can still donate to his campaign here!
 

In this newsletter you will find:

  • We Are Hiring!
  • Upcoming Events! SCI Awareness Day at Fenway, SCI Awareness Day at the State House, Spaulding Community Access Day, and Friendsgiving 
  • Grief Resources
  • August Advocacy Update
  • Peer Mentor Spotlight: Chris 
  • SCIboston B2RI Grant Program *Grants up to $5000*
  • SCI Transition Program - Hear How The Program Helped Rory
  • Grupo de Apoyo en Español *Nuevo enlace de hora y Zoom*
  • Learn About Our Community Partner REquipment!
  • Support Groups 
  • SCIboston YouTube 
  • For Sale/Donations *New Item*

We rely on donations, sponsors and grants to fund our peer programs. If we made a difference in your life or that of someone you love, consider a donation to allow us to continue to assist others as we assisted you.  

 

SCIboston is recognized by the IRS as a not-for-profit 501(c)(3) charitable organization. Your donation is tax deductible to the full extent of the law.

 
 

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Upcoming Events

Flyers are clickable.

ID: White and green flyer with image of Dr. Eric Ruby and Senator Mark Pacheco. Text: please join us at the state house for the annual sci awareness month proclamation and presentation. September 18, 2024, 12 -1 PM, Hall of flags, 24 Beacon St., Boston. A collaboration of Massachusetts rehabilitation facilities, consumer organizations, legislators, scientists, researchers, policymakers, and advocates working toward a common goal to increase awareness and funding for SCI cure. Click here to RSVP
 

Grief Resources

We would like to acknowledge the recent losses that SCIboston has endured and also the grief and loss that accompanies spinal cord injuries.

The following resources may be helpful in a variety of circumstances around the topic of grief.

Navigating Grief with Paralysis: Understanding the 5 Stages of Healing (christopherreeve.org)

The BIG LIST of Grief & Loss Resources | Mentally Fit Pro

Psychology Today: Health, Help, Happiness + Find a Therapist

We Are Hiring!

Social Media Coordinator

We are seeking a Part-Time Social Media Coordinator to manage and enhance our social media
presence and ultimately to reach more individuals with spinal cord injury. The ideal candidate will be
well-versed in current social media trends, have a deep understanding of the spinal cord injury
community, and possess the ability to create engaging content that resonates with our audience.

The full job description is below or click here!

Banner with cartoon drawings of individuals with various abilities. Text logo for SCI Boston advocacy

Read the Advocacy Newsletter to learn more about your voting rights, a big success in local advocacy, how to sign up for reduced MBTA fares (yes, even on the RIDE), and an opportunity to improve sidewalk accessibility. 

Sign up for advocacy emails here or click to read the most recent newsletter. 

Read Our Full Advocacy Update Here 

 

Name: Chris
Injury Level: T12 Complete
Year of Injury: 2006

Mentor Spotlight

Christopher Johnson is a Boston-based real estate broker and Boston EMS dispatcher. He sustained a T12 spinal cord injury from a gunshot wound in 2006. Since then, he has become a passionate advocate for people with SCIs. He became a SCIBoston Peer Mentor in 2013 and later joined the Board in 2021. In his free time, he enjoys playing wheelchair basketball, traveling, fishing, and four-wheeling.

Looking to Connect with a Peer Mentor?

Are you or a family member looking to connect with one of SCIboston's trained peer mentors? Many people find it helpful, reassuring, and hopeful to talk to a mentor about adjusting to life after a spinal cord injury. Topics of conversation could include getting back to work or school after a sci, adaptive sports, relationships and intimacy, bladder and bowel management, and more. We match individuals with peer mentors based primarily on gender, injury level, age, interests, and family life, amongst other considerations. SCIboston's mentors also lead many of our virtual support groups, as well as attend them to provide support to others. If you'd like to hear more about the program or wish to connect with someone, please contact SCIboston's Peer Mentor Coordinator, Diane, at diane@sciboston.org to learn more today.

Click the HERE to watch a video from our Peer Mentors!

To learn more about our other Peer Mentors click HERE!

SCIboston's Back2RI Grant Program

Our Grant Program assists individuals with a Spinal Cord Injury or Disorder (SCI/D) who demonstrate a financial need. These grants can help assist with obtaining either Durable Medical Equipment or Vehicle Modifications up to $5,000
Examples of Eligible Items:
Upgrade and maintenance of wheelchairs, home ramps and lifts, computers, commodes, standing frames, shower chairs/benches, vehicle hand controls, wheelchair locking systems, and more.
To learn more about the eligibility requirements, what our grants cover, and to fill out the application click the button below!

Watch Stacie and Rory tell their story at our recent gala HERE.

Spinal Cord Injury Transition Program

Stacie Selfridge - TRANSITION PROGRAM LIAISON

Stacie oversees SCIboston’s SCI Transition Program, which aims to assist individuals who live in nursing homes to get back to living independently. Stacie brings twenty-plus years of knowledge and experience as an Occupational Therapist to our SCIboston community. We are pleased to announce the SCIboston Spinal Cord Injury Transition Program has had some great successes during it's first two years and we want to continue helping individuals with their independence.

Do you know someone with an SCI that is living in a nursing home? We are looking for new candidates who are motivated to move back into the community.

Please contact info@sciboston.org for more information or to recommend a candidate.

New Time and Zoom Link for the Spanish Support Group

The Spanish Group is moving to a new time and will be held every Monday at 5pm. (The previous time was 4pm.) Please note the new zoom link, as well. Our attendees speak Spanish, as well as Portuguese and Portuguese Creole. We welcome all who are interested to attend.

Grupo de Apoyo en Español

Para personas con una lesión de la médula espinal y sus familiares
Día y hora de la reunión: Todos los lunes a las 5:00pm-6:00pm EST
Zoom enlace: https://us02web.zoom.us/j/85120305159?pwd=qneB94q11slebftYUddwZt0rWWK9zq.1

ID de la reunión: 851 2030 5159 Contraseña: 287818
Número de teléfono: 929-205-6099 US (New York)

Virtual Support Groups

Join us for one or more of our virtual support groups that meet your needs as an individual, family member, or significant other affected by a spinal cord injury or disorder (SCI/D). Our many virtual groups offer opportunities for open discussion, support, and resources. 
Younger Adult Group
Women's Group
Newly Injured 
Spanish Group
After Dark Groups
Family Groups
SCI/D Discussion Group
And many more!
Click the button to access more information and the zoom links!

Our YouTube Channel

Have you missed one of our recent Saturday Education Series Presentations or one of our virtual community events? Did you know that we upload them to our YouTube channel?
We have presentations on:
NEW VIDEO!  SCI & Mental Health: Challenges and Solutions
Spaulding Adaptive Sports & Boston Area Fitness Programs
Hollister Products and Insurance Reimbursement
Nutrition and Metabolic Changes with SCI/D 
Cooking with Arash
Returning to School After SCI
Adaptive Driving
And so much more!

Click the button below to check them all out!

For Sale/Donated

Are you looking for or do you have Durable Medical Equipment, Assistive Technology, Adapted Vehicles or an Accessible Home for sale or donation?
This month we have:
*Electric Lift*
*Sunfire Power Wheelchair*
*Easystan Glider*
Wheelchair Hitch Carrier
Kia Soul Ramp Vehicle 
Duet Basic Bicycle
And so much more!
Click the button below to check them all out or submit your item!

Resources

Our resource page was curated by our staff with information provided by our mentors, group leaders, and other members of the SCI community that includes information about:
Caregivers
Getting Back to Work
Housing, Sports & Recreation
Complex Rehab Technology
Transportation
and so much more!
Click the button below to check them all out!
 
 
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Did you miss a newsletter? All our past newsletters can be found here:

Newsletter Archive

 

Helpful Resources

United Spinal Association Resources and Webinars

Christopher and Dana Reeve Foundation Resources and Webinars

Model Systems Knowledge Translation Center (MSKTC)

Facing Disabilities: for families facing spinal cord injuries

New Mobility Magazine

Spaulding New England Regional SCI Model System

ReUse DME Website: Refurbished Durable Medical Equipment

 Northwest Regional Spinal Cord Injury System Informative Webinars 

AbleThrive: Curated Content Just for You

Massachusetts Office on Disability 

 

SCIboston
2 Rehabilitation Way  | Woburn, Massachusetts 01801
(617) 952-5643 | info@sciboston.org

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