Chapter Name Change

In April 2023 we announced that we have transitioned our Chapter’s name from the Greater Boston Chapter of United Spinal Association, to SCIboston. We will continue to be a chapter of United Spinal Association and offer the same support and services to individuals and families impacted by spinal cord injury in Massachusetts and the New England area. We are making the change to simplify and shorten our name and to be consistent with our website, social media and email addresses. 

Thank You to Our Supporters

Follow Us

info@sciboston.org                    www.sciboston.org

 

The Lenny Zakim Fund Challenge Grant

The Lenny Zakim Fund (LZF) has chosen SCIboston as one of the recipients for their annual Challenge Grant campaign! LZF Will match all new and increased donations up to $2500. Please consider donating and learning more about this campaign by clicking the button.

In this newsletter you will find:

  • Lenny Zakim Fund Challenge Grant
  • SCIboston Grant Program
  • Upcoming Event
  • SCI Awareness Day at Fenway Recap/Pictures
  • Advocacy Update
  • SCI Transition Program
  • Looking to Connect with a Peer Mentor?
  • SCIboston YouTube 
  • Support Groups
  • For Sale/Donations 
  • A Good Read - Music Festival Accessibility
  • Education Series Flyer
  • Helpful Resources
 

We rely on donations, sponsors and grants to fund our peer programs. If we made a difference in your life or that of someone you love, consider a donation to allow us to continue to assist others as we assisted you.  

 

SCIboston is recognized by the IRS as a not-for-profit 501(c)(3) charitable organization. Your donation is tax deductible to the full extent of the law.

 
 

SCIboston's Grants

Our Grant Program assists individuals with a Spinal Cord Injury or Disorder (SCI/D) who demonstrate a financial need. These grants can help assist with obtaining either Durable Medical Equipment or Vehicle Modifications up to $4,000
Examples of Eligible Items:
Upgrade and maintenance of wheelchairs, home ramps and lifts, computers, commodes, standing frames, shower chairs/benches, vehicle hand controls, wheelchair locking systems, and more.
To learn more about the eligibility requirements, what our grants cover, and to fill out the application click the button below!

Upcoming Event

Saturday Education Series: Hollister Catheter Products and Insurance Reimbursement

Saturday October 21st, 2023, 11 a.m. -12:30 PM 

Join Greg from Hollister to learn about the different styles of intermittent catheters available, including Hollister's flagship touch-free product, ‘Vapor Plus Pocket.’ We will also be joined by a national DME (Durable Medical Equipment) supplier to understand catheter coding and billing, as well as navigating the insurance challenges of getting the products you want. There will be time for Q & A.

 

In spite of the rain, SCIboston celebrated Spinal Cord Awareness Day at Fenway Park on September 10. It was a wet and windy game with a few delays, but we persevered and had a super fun experience while watching the Red Sox take the Baltimore Orioles 7-3.

Thank you to everyone who braved the weather to raise awareness! Special thanks goes to Mary Cooper for organizing this great event and to the Red Sox for showing us so much love!

 

This months advocacy update includes calls to action from DPC and the U.S. Access Board, as well as, United Spinal National's advocacy newsletter!

Read The Full Advocacy Update

Interested in getting notifications about our advocacy efforts or being an advocate on the state or national level?
Click here to sign up for email alerts.

Spinal Cord Injury Transition Program

Stacie Selfridge - TRANSITION PROGRAM LIAISON

Stacie oversees SCIboston’s SCI Transition Program, which aims to assist individuals who live in nursing homes to get back to living independently. Stacie brings twenty-plus years of knowledge and experience as an Occupational Therapist to our SCIboston community. We are pleased to announce the SCIboston Spinal Cord Injury Transition Program has had some great successes during it's first year and a half and we want to continue helping individuals with there independence.

Do you know someone with an SCI that is living in a nursing home? We are looking for new candidates who are motivated to move back into the community.

Please contact info@sciboston.org for more information or to recommend a candidate.

Looking to Connect with a Peer Mentor?

Are you or a family member looking to connect with one of SCIboston's trained peer mentors? Many people find it helpful, reassuring, and hopeful to talk to a mentor about adjusting to life after a spinal cord injury. Topics of conversation could include getting back to work or school after a sci, adaptive sports, relationships and intimacy, bladder and bowel management, and more. We match individuals with peer mentors based primarily on gender, injury level, age, interests, and family life, amongst other considerations. SCIboston's mentors also lead many of our virtual support groups, as well as attend them to provide support to others. If you'd like to hear more about the program or wish to connect with someone, please contact SCIboston's Peer Mentor Coordinator, Jessika, at jcoromel@partners.org to learn more today.

Our YouTube Channel

Have you missed one of our recent Saturday Education Series Presentations or one of our virtual community events? Did you know that we upload them to our YouTube channel?
We have presentations on:
Nutrition and Metabolic Changes with SCI/D 
Cooking with Arash
Returning to School After SCI
Adaptive Driving
SCI Awareness Month Playlist 
And so much more!

Click the button below to check them all out!

Virtual Support Groups

Join us for one or more of our virtual support groups that meet your needs as an individual, family member, or significant other affected by a spinal cord injury or disorder (SCI/D). Our many virtual groups offer opportunities for open discussion, support, and resources. 
Women's Group
Newly Injured 
Spanish Group
After Dark Groups
Family Groups
SCI/D Discussion Group
And many more!
Click the button to access more information and the zoom links!

For Sale/Donated

Are you looking for or do you have Durable Medical Equipment, Assistive Technology, Adapted Vehicles or an Accessible Home for sale or donation?
This month we have:
Wheelchair Hitch Carrier
Kia Soul Ramp Vehicle 
Duet Basic Bicycle
Concept Rower
And so much more!
Click the button below to check them all out or submit your item!

Resources

Our resource page was curated by our staff with information provided by our mentors, group leaders, and other members of the SCI community that includes information about:
Caregivers
Getting Back to Work
Housing, Sports & Recreation
Complex Rehab Technology
Transportation
and so much more!
Click the button below to check them all out!
 

A Good Read

Making the Biggest Music Festivals in the U.S. More Accessible
By Alex Ghenis

"The two-weekend, six-day Coachella Valley Music and Arts Festival, in Indio, California, is one of the most famous and well-attended annual music events in the U.S. With over 100,000 attendees packed into a sprawling venue and 100-degree desert temperatures, it’s also a potential nightmare for accessibility."

Continue reading the article by clicking here

 
 

Did you miss a newsletter? All our past newsletters can be found here:

Newsletter Archive

 

Helpful Resources

United Spinal Association Resources and Webinars

Christopher and Dana Reeve Foundation Resources and Webinars

Informative Webinars: Living with an SCI

Facing Disabilities: for families facing spinal cord injuries

New Mobility Magazine

Spaulding New England Regional SCI Model System

ReUse DME Website: Refurbished Durable Medical Equipment

 Northwest Regional Spinal Cord Injury System Informative Webinars 

AbleThrive: Curated Content Just for You

Massachusetts Office on Disability 

 

SCIboston
2 Rehabilitation Way  | Woburn, Massachusetts 01801
(617) 952-5643 | info@sciboston.org

Follow Us

SCIboston
2 Rehabilitation Way  | Woburn, Massachusetts 01801
(617) 952-5643 | info@sciboston.org

Follow Us

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