A Special Thank You to Our Supporters

Travis Roy Foundation
Craig H Neilsen Foundation
Lenny Zakim Fund
Cummings Foundation

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info@sciboston.org                    www.sciboston.org

 

Diversity, Equity, Inclusion, Access, and Belonging Statement

 SCIboston is committed to creating diverse, equitable, accessible and inclusive environments, fostering a culture that promotes belonging and provides equal opportunities for all. SCIboston ensures a safe and inclusive space for everyone, without discrimination based on national origin, race, color, religion, disability, gender, gender expression, age, marital status, military status, sexual orientation, or family status. Our programs, services, and policies are designed to be accessible, inclusive, and reflective of the community we serve. SCIboston recognizes that nurturing Diversity, Equity, Inclusion, Access, and Belonging (DEIAB) is a continuous journey requiring unwavering dedication, education, dialogue, and integrity.

 

In this newsletter you will find:

  • SCIboston Launches The Travis Roy Legacy Grant Program *Grants up to $5000*
  • Upcoming Events! Friendsgiving Luncheon, Conceivable Gala, After Dark Groups, and Power of Art Gala Save The Date!!
  • You have a Right to Vote!
  • November Advocacy Update
  • Peer Mentor Spotlight: Welcome to Our Newest Peer Mentors 
  • SCI Transition Program - Hear How The Program Helped Rory
  • Community Tidbits - PCA Course, New Adaptive Driving Evaluation Company, Access to Exercise, Free COVID-19 Tests 
  • Support Groups 
  • SCIboston YouTube 
  • Resources

We rely on donations, sponsors and grants to fund our peer programs. If we made a difference in your life or that of someone you love, consider a donation to allow us to continue to assist others as we assisted you.  

 

SCIboston is recognized by the IRS as a not-for-profit 501(c)(3) charitable organization. Your donation is tax deductible to the full extent of the law.

 
 

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SCIboston Launches The Travis Roy Legacy Grant Program

SCIboston is excited to announce the continuation of its quality of life grant program for individuals with a spinal cord injury or disorder and will rename it The Travis Roy Legacy Grant Program.


The Travis Roy Foundation (TRF) was established in 1996 to help other spinal cord injury survivors and to fund
research. The Travis Roy Foundation was dedicated to helping spinal cord injury survivors live more independent and hopeful lives through adaptive equipment grants. Thousands of spinal cord injured survivors have been empowered through the quality of life grant program offered by The Travis Roy Foundation.


The TRF has been winding down its operations at the wishes of Travis. SCIboston has been fortunate enough to have a strong history with Travis and the TRF, sharing in our missions to help survivors of spinal cord injury.
Since 1992, SCIboston (formerly the Greater Boston Chapter of United Spinal Association and RISE Above Paralysis) has assisted thousands of people- injured and family members alike- who have been affected by traumatic spinal cord injuries (SCIs). From the moment of injury, we offer hope through support groups and one-on-one support, understanding, and guidance. Our peer mentors and compassionate community show that rich and fulfilling lives are possible in the aftermath of injury.


Historically SCIboston’s quality of life’s grant program was funded primarily through the efforts of Trent Theroux. Trent participated in four long distance swims which raised over $200,000 for SCIboston’s grant program.


Initial funding for the Travis Roy Legacy Grant Program is from a donation from the TRF, proceeds from two wiffle ball tournaments in VT and two paddleboard and hiking campaigns by Allie Skelley.


“Receiving this funding means our organization will be able to continue to offer quality of life grants to the Spinal Cord Injury Community. This includes funding for hospital beds, shower chairs, vehicle modifications, assistive technology and other durable medical equipment that will ultimately enhance an individual’s quality of life” Molly Sebo, Executive Director SCIboston.


Brenda Roy, Travis’ mom said “We are thrilled that Travis’ legacy will live on with this grant program and we are pleased to help the spinal cord injury community in any way we can.”


Grants up to $5,000 are available to qualified individuals in MA, NH, VT, ME and RI. Applications are available on the www.sciboston.org website.


SCIboston is a dedicated group of individuals affected by a spinal cord injury or disorders (SCI/D) including family members, loved ones, healthcare associates and many more.Through grant opportunities, mentorship, support and community building, SCIboston strives to reach, inspire, support and empower individuals with spinal cord injury.
 

We have offices at Encompass Rehab Hospital in Woburn, MA and at Spaulding Rehabilitation Hospital in Charlestown,
MA.


Additional information can be found at www.sciboston.org. To donate to The Travis Roy Legacy Grant Program click here!

 

Upcoming Events

Flyers are clickable.

ID: Blue and red flyer with the Image of a cartoon blUE Maserati. Text reads: conceivable - hey story of perseverance, Book launch/gala/fundraiser, friday, November 8, 2024, 6-9 PM, double tree hotel, 5400 Computer Drive, Westborough, MA. Click here for tickets!!
ID: White and orange flyer with text. Text reads: SCI Boston Saturday education series, adaptive sports, fitness, and recreational programs. Saturday, November 16 2024, 11 AM -12:30 PM. Learn about adaptive sports, fitness, and recreation opportunities in the greater Boston area. You will hear from representatives mean spalding adaptive sports, Kelly brush foundation, we plan aventures, and Oak square YMCA. Find out what is available and how you can get involved! Q and a to follow. click the flyer to join the meeting.
ID: a colorful flyer background that looks like paint brush strokes. A slightly transparent box in the middle with text that reads save the date for SCI Boston's annual gala. The power of art, and evening of art to celebrate the SCI community. Saturday, March 29, 2025. Boston Marriott Newton
ID: a cream color in salmon Color flyer with text and graphics of people some wheelchair users and some non-wheelchair users.. They are displayed as couples holding hands. Text reads: SCI Boston logo. We are back! SCI Boston is relaunching the After Dark groups! These are safe and support and spaces to discuss all topics to related tu SCI, including intimacy, sex, and relationships. Please attend whichever group is the best fit for you. Men's group (for men with SCI), meets the third Thursday of each month at 7 PM EST. Women's group (for women with SCI), meets the first Thursday of each month at 7 PM. Women's group (for women who have a partner with SCI), meets the first Wednesday of each month at 7 PM. For more info and zoom links, click the flyer and it will bring you to the support groups page of our website.
 

Elections are Right Around the Corner!

You have a right to vote! This right is protected by a number of federal laws, including the ADA. Each state’s laws on voting differ, but every state must offer accessibility accommodations to voters with disabilities. These accommodations can include: service animal support, bringing another person to assist with filling out a ballot, accessible parking spaces, and/or voting at a wheelchair accessible polling location or through curbside voting. Contact your state or local election office to confirm that your polling location is accessible to you.

Voting in MA? There are three ways that you can still vote in Massachusetts:

  1. You can vote by mail by bringing your ballot to a drop box, or by returning it in person to your local election office.
  2. You can vote by Accessible Electronic Vote by Mail, if you applied by Oct. 29th
  3. You can vote in person between 7:00 a.m. and 8:00 p.m. on November 5th at your polling location.

Parking, passenger drop-off, sidewalks, entrances, and the voting area of all polling locations must be accessible to people with disabilities in Massachusetts. Each polling location must have at least one accessible voting machine called an AutoMARK Voter Assist Terminal. The AutoMARK has a touchscreen and can be equipped with a sip and puff tube or headphones for an audio screen reader. Learn more about voting in Massachusetts with a disability. 

Having issues at the polls? The Disability Law Center will have a hotline open on Election Day for voters who are having problems voting anywhere in Massachusetts. Call 617-723-8455 (2024#) or 800-872-9992 (2024#). The Disability Law Center would also like to know if you have encountered barriers to voting at a polling location, and if so, please fill out this survey. You can also file a complaint with the Secretary of State’s office, Elections Division, at 1-800-462-VOTE (8683). 

Banner with cartoon drawings of individuals with various abilities. Text logo for SCI Boston advocacy

Want to read more about new wheelchair repair regulations, the US DOT’s largest airline disability fine, or a PCA training course? Sign up for advocacy emails to get the Advocacy Newsletter delivered straight to your inbox! Or click here to read it online.


Also, don’t forget to Vote! Your voice matters!

 

Looking to Connect with a Peer Mentor?

Are you or a family member looking to connect with one of SCIboston's trained peer mentors? Many people find it helpful, reassuring, and hopeful to talk to a mentor about adjusting to life after a spinal cord injury. Topics of conversation could include getting back to work or school after a sci, adaptive sports, relationships and intimacy, bladder and bowel management, and more. We match individuals with peer mentors based primarily on gender, injury level, age, interests, and family life, amongst other considerations. SCIboston's mentors also lead many of our virtual support groups, as well as attend them to provide support to others. If you'd like to hear more about the program or wish to connect with someone, please contact SCIboston's Peer Mentor Coordinator, Diane, at diane@sciboston.org to learn more today.

Click the HERE to watch a video from our Peer Mentors!

To learn more about our other Peer Mentors click HERE!

Watch Stacie and Rory tell their story at our recent gala HERE.

Spinal Cord Injury Transition Program

Stacie Selfridge - TRANSITION PROGRAM LIAISON

Stacie oversees SCIboston’s SCI Transition Program, which aims to assist individuals who live in nursing homes to get back to living independently. Stacie brings twenty-plus years of knowledge and experience as an Occupational Therapist to our SCIboston community. We are pleased to announce the SCIboston Spinal Cord Injury Transition Program has had some great successes during it's first two years and we want to continue helping individuals with their independence.

Do you know someone with an SCI that is living in a nursing home? We are looking for new candidates who are motivated to move back into the community.

Please contact info@sciboston.org for more information or to recommend a candidate.

Community Tidbits

Understanding Spinal Cord Injury: A Course for Personal Care Assistants

This course is designed to help the training of personal care assistants who work with clients with spinal cord injury (SCI). The course’s goal is to increase knowledge about SCI, improve communication, and enhance quality of care.

For more info click here

 
ID: flyer with multicolor graphics and two images of persons with disabilities in a gym using exercise equipment. Text reads:COMMUNITY,CONFIDENCE,EXERCISE, STRENGTH& SUPPORTThis recreational program is designed to cater topeople with disabilities through structured exerciseplans.Our adaptive fitness program is dedicated to empoweringindividuals of all abilities to achieve their fitness goals ina supportive and inclusive environment. There is a varietyof equipment available to our program members includingNuSteps, Ski Ergometers, FES bike, and a Keiser functionaltrainer system.This program is designed to support those who have a mobilitydisability such as spinal cord injury, stroke, or who may usean assistive device or wheelchair for mobility.Nicole Clarke, Program DirectorNClarke@ymcaboston.org(857) 378 - 0016FOR MORE INFORMATION OR TO REGISTER,Click the flyer to email Nicole at the email above.COMPLETE THEINTEREST FORMPROGRAM AVAILABILITYPROGRAM COSTYMCA OF GREATER BOSTONIncluded in YMCA membershipMonday - Friday | 9:00am - 4:00pm1:1 training support availableOak Square YMCA615 Washington StreetBrighton, MA 02135
 

Clinical Driving Evaluations, Adaptive Driving Training,and Readiness to Drive Assessments

Owned and operated by Occupational Therapists

There's a new adaptive driving evaluation and lesson company in MA. You can find it here: https://www.drive-rx.com/faqs-4

 

Free COVID-19 Tests:

The U.S. Department of Health and Human Services Administration for Strategic Preparedness and Response and the United States Postal Service has begun a new program offering free COVID-19 tests. Each order will include four tests that will detect the current COVID-19 variants.

One of the available test options is the Orasure InteliSwab test, which is more accessible for people with low manual dexterity. For more information on the features that make the InteliSwab test more accessible, please visit, ACL.gov/AccessibleTests. Order accessible tests here. Order standard tests here.

 

Virtual Support Groups

Join us for one or more of our virtual support groups that meet your needs as an individual, family member, or significant other affected by a spinal cord injury or disorder (SCI/D). Our many virtual groups offer opportunities for open discussion, support, and resources. 
Younger Adult Group
Women's Group
Newly Injured 
Spanish Group
After Dark Groups
Family Groups
SCI/D Discussion Group
And many more!
Click the button to access more information and the zoom links!

Our YouTube Channel

Have you missed one of our recent Saturday Education Series Presentations or one of our virtual community events? Did you know that we upload them to our YouTube channel?
We have presentations on:
NEW VIDEO!  SCI & Mental Health: Challenges and Solutions
Spaulding Adaptive Sports & Boston Area Fitness Programs
Hollister Products and Insurance Reimbursement
Nutrition and Metabolic Changes with SCI/D 
Cooking with Arash
Returning to School After SCI
Adaptive Driving
And so much more!

Click the button below to check them all out!

Resources

Our resource page was curated by our staff with information provided by our mentors, group leaders, and other members of the SCI community that includes information about:

Caregivers
Getting Back to Work
Housing, Sports & Recreation
Complex Rehab Technology
Transportation
and so much more!

Click the button below to check them all out!

 
 

Did you miss a newsletter? All our past newsletters can be found here:

Newsletter Archive

 

Helpful Resources

United Spinal Association Resources and Webinars

Christopher and Dana Reeve Foundation Resources and Webinars

Model Systems Knowledge Translation Center (MSKTC)

Facing Disabilities: for families facing spinal cord injuries

New Mobility Magazine

Spaulding New England Regional SCI Model System

ReUse DME Website: Refurbished Durable Medical Equipment

 Northwest Regional Spinal Cord Injury System Informative Webinars 

AbleThrive: Curated Content Just for You

Massachusetts Office on Disability 

 

SCIboston
2 Rehabilitation Way  | Woburn, Massachusetts 01801
(617) 952-5643 | info@sciboston.org

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