Thank You To Our Sponsors

Silver Sponsors

Advanced Wheels   Encompass Health   MobilityWorks   PNPS Nursing   
Spaulding Rehab Hospitals 

Bronze Sponsors

Hollister   Hunts Photo   Journey Forward   Lifeward   Michael Mahoney
Massachusetts Walks Again   Quantum
Bob Nichol, Linda Riley,Robert Mueller, and Bernard Metzger in memory of Karen Zander

A Special Thank You to Our Supporters

Travis Roy Foundation
Craig H Neilsen Foundation
Lenny Zakim Fund
Cummings Foundation

info@sciboston.org                    www.sciboston.org

Our Diversity, Equity, Inclusion, Access, and Belonging (DEIAB) statement can be found here.

 

In this newsletter you will find:

  • Upcoming Events!
    • Power of Art Gala GET YOUR TICKETS!!!
  • Meet SCIboston's 2025 Marathon Runners!
  • *NEW VIDEO* Saturday Education Series: Keeping Skin Healthy After SCI
  • "TR24" Legacy Wiffleball Tournament Announcement 
  • Travis Roy Legacy Grant Program
  • Advocacy Update 
  • Medicaid Cuts Information 
  • Support Groups
  • SCI Transition Program - Do You Know Someone In A Nursing Home?
  • Support Groups 
  • Resources
  • Community Tidbits - Health-Related Challenges of Growing Old with SCI, Empower SCI's Pathways Spring Series

We rely on donations, sponsors and grants to fund our peer programs. If we made a difference in your life or that of someone you love, consider a donation to allow us to continue to assist others as we assisted you.  

 

SCIboston is recognized by the IRS as a not-for-profit 501(c)(3) charitable organization. Your donation is tax deductible to the full extent of the law.

 
 

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Upcoming Events

Flyers are clickable.

GET YOUR TICKETS TO THE POWER OF ART GALA NOW!

ID: colorful flyer with paint brush strokes for the background with a framed text in the foreground. Text: SCIvoston's can you all gala. The power of art. And evening of art to celebrate the SCI community. Saturday, March 29, 2025, 4:30 PM, the Boston Marriott Newton, 2345 Commonwealth Ave., Newton, MA. Join us for a transformative night at our fundraising gala with an art exhibit, cocktail reception, Cita dinner, silent auction, raffles, and awards. Ticket sales end of March 15. Click here for tickets.

We are so excited for this year's gala! We will be celebrating ten amazing artists from the spinal cord injury community, as well as, recognizing all the amazing work our staff, volunteers, peer mentors, and board of directors have done in the last year. Get your tickets now by clicking here!

Meet two of the ten artists below!

If you or your business would like to be a sponsor click here!

If you cannot attend this year's gala but would like to contribute, please click here to donate!

Meet SCIboston's 2025 Boston Marathon Runners!

Gustav Jigrup

I am beyond excited to share that I will be running the 2025 Boston Marathon on behalf of SCIboston! This is a lifelong dream of mine that I am sure I will cherish forever. Learn more about Gustav and donate to his campaign here!

Jay Bolton

I am excited to be running the 2025 Boston Marathon on behalf of SCIboston! I can honestly say that running a marathon was never something I thought I’d be doing!  However, an innocent conversation about running with Jeff Kuhl, a colleague and last year's SCIboston runner, changed that sentiment. Learn more about Gustav and donate to his campaign here!

 

February's Saturday Education Series was all about learning strategies for maintaining skin health after spinal cord injury, preventing pressure ulcers, and what to do if you get one. You will learn about the causes of skin breakdown, ways to protect your skin, how to recognize warning signs, when and where to seek treatment, and the various types of interventions and treatments available. Thank you to Dr. Sue and Melissa for all your knowledge and time!
 
While you are there, check out our other education series presentations on: SCI & Mental Health: Challenges and Solutions,  Nutrition and Metabolic Changes with SCI/D, Cooking with Arash, Returning to School After SCI, Adaptive Driving,  and  more!

 

The second SCIboston “TR24” Legacy WIFFLEBALL Tournament will be held on June 14, 2025, and will continue to benefit SCIboston’s Travis Roy Legacy Grant Program. The grants are used for durable medical equipment not covered by insurance and vehicle modification costs. These grants aim to positively impact the quality of the lives of people with spinal cord injuries.

From 2001 until 2021, the Travis Roy Foundation WIFFLE BALL Tournament was held at the Little Fenway Complex in Essex Junction, Vermont. Over the years more than $7.5 million was raised and provided support to thousands of paralyzed survivors of spinal cord injuries. In 2022 the Tourney was relaunched to benefit a charity Travis Roy was very involved in during his lifetime -- SCIBoston. SCIboston is excited to carry on Travis’ legacy and host the SCIboston “TR24” Legacy WIFFLEBALL Tournament.

To donate to the Travis Roy Legacy Grant Program and learn more about this awesome event, click here!!!

SCIboston's Travis Roy Legacy Grant Program

SCIboston is excited to announce the continuation of its quality of life grant program for individuals with a spinal cord injury or disorder and has renamed it The Travis Roy Legacy Grant Program. To read the full press release click here!

Our Grant Program assists individuals with a Spinal Cord Injury or Disorder (SCI/D) who demonstrate a financial need. These grants can help assist with obtaining either Durable Medical Equipment or Vehicle Modifications up to $5,000

Examples of Eligible Items:

Upgrade and maintenance of wheelchairs, home ramps and lifts, computers, commodes, standing frames, shower chairs/benches, vehicle hand controls, wheelchair locking systems, and more.

To learn more about the eligibility requirements, what our grants cover, and to fill out the application click the button below!

Banner with cartoon drawings of individuals with various abilities. Text logo for SCI Boston advocacy

Rally for PCA Services!

The Boston Center for Independent Living and the PCA Union, 1199SEIU, are hosting a rally on March 12th at 1pm at the Massachusetts Statehouse! Join them in speaking out against any budget cuts or restrictions to the MassHealth PCA program! 

Plus, Let's Save Medicaid a.k.a MassHealth! The infographics below explain what's happening. Click on them to enlarge them.
More info on how you can advocate can be found in this month's Advocacy Newsletter here!

Watch Stacie and Rory tell their story at our 2024 Gala HERE.

Spinal Cord Injury Transition Program

Stacie Selfridge - TRANSITION PROGRAM LIAISON

Stacie oversees SCIboston’s SCI Transition Program, which aims to assist individuals who live in nursing homes to get back to living independently. Stacie brings twenty-plus years of knowledge and experience as an Occupational Therapist to our SCIboston community. We are pleased to announce the SCIboston Spinal Cord Injury Transition Program has had some great successes during it's first two years and we want to continue helping individuals with their independence.

Do you know someone with an SCI that is living in a nursing home? We are looking for new candidates who are motivated to move back into the community.

Please contact info@sciboston.org for more information or to recommend a candidate.

Virtual Support Groups

Join us for one or more of our virtual support groups that meet your needs as an individual, family member, or significant other affected by a spinal cord injury or disorder (SCI/D). Our many virtual groups offer opportunities for open discussion, support, and resources. 
Younger Adult Group
Women's Group
Newly Injured 
Spanish Group
After Dark Groups *Relaunched*
Family Groups
SCI/D Discussion Group
And Nutrition Group
Click the button to access more information and the zoom links!

Resources Page

Our resource page was curated by our staff with information provided by our mentors, group leaders, and other members of the SCI community that includes information about:

Caregivers
Getting Back to Work
Housing, Sports & Recreation
Complex Rehab Technology
Transportation
and so much more!

Click the button below to check them all out!

 

Community Tidbits

Health Related Challenges of Growing Old with SCI

Be on the lookout for details about an opportunity to join a free 6 session virtual program at 1 session per month that will be led by Dr. H’Sien Hayward. Dr. Hayward is a licensed clinical psychologist and a SCI survivor - you may remember her from the Saturday Ed Series last May about Mental Health and SCI. This program will be limited to 10 participants and will have no cost associated with it. The purpose of the program is to offer discussion, strategy, and skills in a group setting for adjustment to life after a spinal cord injury. More details regarding application for the program and content to come....

Empower Pathways : Spring series

February through May 2025

The Spring Series is made up of several day events throughout the Northeast including a “Family Dinner” cooking experience, an opportunity to try adaptive sports, a day of art at the Museum of Fine Arts (followed by a trip through Boston to a brewery), an adaptive ski day, and an urban adventure in Manhattan.

  These programs are open to anyone with a spinal cord injury and are a great way to get a taste of the Empower SCI magic. 

**Cost of most Pathways Programs is $25 per person to cover administrative fees associated with programming, but please apply if you are interested as scholarships are available.

 
 

Did you miss a newsletter? All our past newsletters can be found here:

Newsletter Archive

 

Helpful Resources

United Spinal Association Resources and Webinars

Christopher and Dana Reeve Foundation Resources and Webinars

Model Systems Knowledge Translation Center (MSKTC)

Facing Disabilities: for families facing spinal cord injuries

New Mobility Magazine

Spaulding New England Regional SCI Model System

ReUse DME Website: Refurbished Durable Medical Equipment

 Northwest Regional Spinal Cord Injury System Informative Webinars 

AbleThrive: Curated Content Just for You

Massachusetts Office on Disability 

 

SCIboston
2 Rehabilitation Way  | Woburn, Massachusetts 01801
(617) 952-5643 | info@sciboston.org

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