| |  |  | A Special Thank You to Our Supporters Travis Roy Foundation
Craig H Neilsen Foundation
Lenny Zakim Fund
Cummings Foundation
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| In this newsletter you will find: - Meet Diane DeRoche, Our New Peer Mentor Coordinator
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Upcoming Events! "24" Legacy WIFFLEBALL Tournament and Ice Cream Social -
Grupo de Apoyo en Español -
Advocacy Update - Section 504, MBTA, Events, and more. -
Looking to Connect with a Peer Mentor? - SCIboston B2RI Grant Program
- SCI Transition Program - Hear How The Program Helped Rory
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Support Groups -
SCIboston YouTube - *NEW VIDEO* on Mental Health and SCI -
For Sale/Donations -
Gala Images and Videos! - Community Tidbits - Empower SCI Teen Program and Unexpected Journey Podcast
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We rely on donations, sponsors and grants to fund our peer programs. If we made a difference in your life or that of someone you love, consider a donation to allow us to continue to assist others as we assisted you. SCIboston is recognized by the IRS as a not-for-profit 501(c)(3) charitable organization. Your donation is tax deductible to the full extent of the law. |
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| Due to the length, the end of this newsletter may get cut off by some email providers.
To read it in its entirety we suggest Viewing it in your web browser |
| | Diane DeRoche
Peer Mentor Coordinator Join us in welcoming Diane to her new role with SCIboston! Diane oversees SCIboston’s Peer Mentor Program, and facilitates the Family and Friends weekly meeting. Diane became involved with SCIboston after her son Ryan had a C4, incomplete SCI injury while riding his mountain bike in Spain. Diane’s background is in Healthcare and Social Services. In her spare time, Diane enjoys cooking, reading, gardening and spending time with her family and friends. Contact: diane@sciboston.org |
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| | Upcoming Events Flyers are clickable. |
|  | Josh Keller will be coaching a Wiffleball team, The Pain in the Necks. If you would like to donate to them click here |
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|  | | Grupo de Apoyo en Español Para personas con una lesión de la médula espinal y sus familiares
Día y hora de la reunión: Todos los lunes a las 4:00pm-5:00pm EST
Zoom enlace: https://us02web.zoom.us/j/85992267883?pwd=MTVDbVhuOVdsK2xBczZSSmM5eWtYdz09 ID de la reunión: 859 9226 7883 Contraseña: 213375
Número de teléfono: 929-205-6099 US (New York) SCIboston desea dar la bienvenida a los participantes de nuestro grupo de apoyo virtual semanal de habla hispana. Este grupo está abierto a todas las personas de habla hispana y portuguesa que tengan una lesión de la médula espinal. Ocurre los lunes de 4 a 5 pm. ¡Pasa la voz! |
|  We’re collecting stories about healthcare access issues! This month's advocacy update includes an overview of the changes to Section 504, updates to the MA independent assessor entity, proposed projects addressing accessibility at the MBTA, and numerous input opportunities on the local, state, and federal level!
Click the link to
Read Our Full Advocacy Update Interested in getting notifications about our advocacy efforts or being an advocate on the state or national level? |
| Looking to Connect with a Peer Mentor? Are you or a family member looking to connect with one of SCIboston's trained peer mentors? Many people find it helpful, reassuring, and hopeful to talk to a mentor about adjusting to life after a spinal cord injury. Topics of conversation could include getting back to work or school after a sci, adaptive sports, relationships and intimacy, bladder and bowel management, and more. We match individuals with peer mentors based primarily on gender, injury level, age, interests, and family life, amongst other considerations. SCIboston's mentors also lead many of our virtual support groups, as well as attend them to provide support to others. If you'd like to hear more about the program or wish to connect with someone, please contact SCIboston's Peer Mentor Coordinator, Diane, at diane@sciboston.org to learn more today. Click the HERE to watch a video from our Peer Mentors! To learn more about Michaela and our other Peer Mentors click HERE! |
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| SCIboston's Back2RI Grant Program Our Grant Program assists individuals with a Spinal Cord Injury or Disorder (SCI/D) who demonstrate a financial need. These grants can help assist with obtaining either Durable Medical Equipment or Vehicle Modifications up to $4,000 . Examples of Eligible Items: Upgrade and maintenance of wheelchairs, home ramps and lifts, computers, commodes, standing frames, shower chairs/benches, vehicle hand controls, wheelchair locking systems, and more. To learn more about the eligibility requirements, what our grants cover, and to fill out the application click the button below! |
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|  | Watch Stacie and Rory tell their story at our recent gala HERE. |
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Spinal Cord Injury Transition Program Stacie Selfridge - TRANSITION PROGRAM LIAISON Stacie oversees SCIboston’s SCI Transition Program, which aims to assist individuals who live in nursing homes to get back to living independently. Stacie brings twenty-plus years of knowledge and experience as an Occupational Therapist to our SCIboston community. We are pleased to announce the SCIboston Spinal Cord Injury Transition Program has had some great successes during it's first two years and we want to continue helping individuals with their independence. Do you know someone with an SCI that is living in a nursing home? We are looking for new candidates who are motivated to move back into the community. Please contact info@sciboston.org for more information or to recommend a candidate. |
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| Virtual Support Groups Join us for one or more of our virtual support groups that meet your needs as an individual, family member, or significant other affected by a spinal cord injury or disorder (SCI/D). Our many virtual groups offer opportunities for open discussion, support, and resources. Younger Adult Group Women's Group Newly Injured Spanish Group After Dark Groups Family Groups SCI/D Discussion Group And many more! Click the button to access more information and the zoom links! |
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Our YouTube Channel Have you missed one of our recent Saturday Education Series Presentations or one of our virtual community events? Did you know that we upload them to our YouTube channel? We have presentations on: NEW VIDEO! SCI & Mental Health: Challenges and Solutions Spaulding Adaptive Sports & Boston Area Fitness Programs Hollister Products and Insurance Reimbursement Nutrition and Metabolic Changes with SCI/D Cooking with Arash Returning to School After SCI Adaptive Driving And so much more! Click the button below to check them all out! |
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| For Sale/Donated Are you looking for or do you have Durable Medical Equipment, Assistive Technology, Adapted Vehicles or an Accessible Home for sale or donation? This month we have: *SMART DRIVE Accessory* *Karman Manual Wheelchair* *2 different Standing Machines* Wheelchair Hitch Carrier Kia Soul Ramp Vehicle Duet Basic Bicycle And so much more! Click the button below to check them all out or submit your item! |
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Resources Our resource page was curated by our staff with information provided by our mentors, group leaders, and other members of the SCI community that includes information about: Caregivers Getting Back to Work Housing, Sports & Recreation Complex Rehab Technology Transportation and so much more! Click the button below to check them all out! |
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| 2024 Annual Gala was a huge success! What a wonderful night with wonderful people listening to powerful stories, cheering for our award winners, and celebrating our community. A special thank you to all of our sponsors for supporting us. Click the button below to see all the amazing videos and photos from that night. |
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| | |  | Empower SCI teen program August 11-17, 2024 East Greenwich, RI Join us for our first ever program geared towards young adults with spinal cord injuries. The program will enroll 8 individuals ages 14-22 to our 1-week program in Rhode Island. The program will be guided by our on-site peer mentors, our expert clinicians, and a team of directors who have run similar programs for over a decade. Interested in more info? Feel free to reach out to Carrie to connect, ask questions, and potentially connect with a past participant who can fill you in on all of the details on what to expect, and how to prepare. Accepting applications until June 15th- apply now to be considered for this year’s summer program! Full flyer below. Register Here! |
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 | The Unexpected Journey Podcast Host Tim Brown The Unexpected Journey podcast tells stories of individuals living with spinal cord injury and other disabilities in their words, no one else's. Host, Tim Brown, a C4/C5 quadriplegic since 2011, talks with adaptive athletes, disability activists, artists, and others about the highs and lows, the struggles and the triumphs, and the lessons learned along their journey. Season 4 releases at the end of June. In the meantime, catch up on Seasons 1 through 3 on Apple Podcasts and Spotify. Apple Podcasts - The Unexpected Journey Spotify - The Unexpected Journey |
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| |  | | Did you miss a newsletter? All our past newsletters can be found here: |
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| SCIboston
2 Rehabilitation Way | Woburn, Massachusetts 01801
(617) 952-5643 | info@sciboston.org |
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