A Special Thank You to Our Supporters

Travis Roy Foundation
Craig H Neilsen Foundation
Lenny Zakim Fund
Cummings Foundation

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info@sciboston.org                    www.sciboston.org

 

In this newsletter you will find:

  • “24” Legacy Wiffleball Tournament Recap
  • Upcoming Events! Ice Cream Social, Picnic en el Parque, Red Sox Game, SCI Awareness Day at the State House
  • Advocacy Update - Section 504, MBTA, Events, and more.
  • Peer Mentor Spotlight 
  • SCIboston B2RI Grant Program
  • SCI Transition Program - Hear How The Program Helped Rory
  • Grupo de Apoyo en Español
  • Support Groups 
  • SCIboston YouTube 
  • For Sale/Donations 
  • Community Tidbits - Disability History Museum and Personal Exoskeletons Webinar 

We rely on donations, sponsors and grants to fund our peer programs. If we made a difference in your life or that of someone you love, consider a donation to allow us to continue to assist others as we assisted you.  

 

SCIboston is recognized by the IRS as a not-for-profit 501(c)(3) charitable organization. Your donation is tax deductible to the full extent of the law.

 
 

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“24” Legacy Wiffleball Tournament raises over $45,000!

BW Supers from Brookline, MA beat the Buckners from Burlington, VT to win the team
championship at the Little Fenway complex in Jericho VT to conclude a wet, exciting “24”
Legacy Wiffleball Tournament. Over $45,000 was raised to benefit the Travis Roy Legacy Grant
Program which will provide grants for durable medical equipment and vehicle modifications to
spinal cord injured individuals.

There were 8 teams participating, with two affiliated with SCIboston: the Pain in the Necks and
the SCIboston team.

The Pain in the Necks (NH), coached by Josh Keller, was a crowd favorite and rebounded from
being routed in their first game 14-0 to winning their next two games in stunning fashion. Josh
must have made some adjustments and a rousing pep talk to rally his team. They entered the
playoffs the #3 seed, but ran into a hot Buckners team and were eliminated.

The SCIboston team (MA) went winless in the round robin but almost upset the #1 seed, the
Bad Larry’s (MA) in the playoffs. SCIboston was up 3-2 with two outs and two strikes in the
bottom of the last inning, but Bad Larry’s Dave Spidle smacked a two-run homer over the
Green Monster to win the game and break the hearts of the SCIboston team.

The event was delayed by an hour due to rain, but the grounds crew of Larry Riegert, Tim and
Ron Rose did a tremendous job getting Little Fenway, Little Wrigley and Field of Dreams ready
to play on. It was very slippery on the basepaths and most players were covered in mud by the
end of the day.

Joel Kynoch provided entertaining commentary as the announcer on Little Fenway and Dan
Pion helped manage the event and keep things on schedule.

BW Supers’ ageless Pete Grimes showed that good pitching is the key to win in this tournament
as they won their first title after finishing second last year.

The Pain in the Necks, SCIboston and the Bad News Bears (MA) were first time teams and
learned a lot about what it takes to win. There were 5 veteran teams including BW Supers,
Buckners, Bad Larry’s, Miami Vice (VT) and the Curse (VT). The veteran teams all played well.
The BW Supers were the leading fundraising team and Jacob Gurdin was the leading individual
fundraiser, so it was a “Triple Crown” sweep of honors for the BW Supers.

The tournament has been held since 2002 under the leadership of the Travis Roy Foundation.
Both Brenda and Lee Roy attended the event. Lee Roy, Travis’ father spoke at the Welcome
Ceremony and provided a heartfelt tribute to all those who have played in the past and
encouraged all that were in attendance to have FUN to honor Travis’ intention for the event.

SCIboston is honored to support this event and the Travis Roy Legacy Grant Program to improve
the quality of life for those with spinal cord injuries for years to come.

Thank you to all who donated, played, umped, announced and prepared the fields.

 

Upcoming Events

Flyers are clickable.

 
ID: White and green flyer with image of Dr. Eric Ruby and Senator Mark Pacheco. Text: please join us at the state house for the annual sci awareness month proclamation and presentation. September 18, 2024, 12 -1 PM, Hall of flags, 24 Beacon St., Boston. A collaboration of Massachusetts rehabilitation facilities, consumer organizations, legislators, scientists, researchers, policymakers, and advocates working toward a common goal to increase awareness and funding for SCI cure. Click here to RSVP
 

We’re collecting stories about healthcare access issues! This month's advocacy update includes a report on United Spinal’s Roll on Capitol Hill, updates to the MA independent assessor entity, updates to the MBTA settlement agreement, and numerous input opportunities on the local, state, and federal level!
Click the link to
Read Our Full Advocacy Update

Interested in getting notifications about our advocacy efforts or being an advocate on the state or national level?
Click here to sign up for email alerts.
 

Name: Rob
Injury Level: C6 Incomplete
Year of Injury: 2020

Mentor Spotlight

Rob’s injury occurred at the age of 66 after a fall from a 20-foot ladder. Rob’s tetraplegic injury level presents as paraplegic and allows him to use a manual wheelchair. Rob is an interesting guy with a zestful curiosity for life. He has a BS in computer science and is very tech-savvy. He has held jobs in the past as a pastry chef, and rough framer, has been a beekeeper, Scout Master, pilot, and more. He’s volunteered his time with Boy Scouts, kids league baseball, National Park’s Pierce Mill in DC, and now most recently as a mentor for SCIboston. Through his own journey after SCI, he has experience with independent living, getting back to work, and mindfulness. Rob is optimistic and a great conversationalist, as well as a genuine listener.

Looking to Connect with a Peer Mentor?

Are you or a family member looking to connect with one of SCIboston's trained peer mentors? Many people find it helpful, reassuring, and hopeful to talk to a mentor about adjusting to life after a spinal cord injury. Topics of conversation could include getting back to work or school after a sci, adaptive sports, relationships and intimacy, bladder and bowel management, and more. We match individuals with peer mentors based primarily on gender, injury level, age, interests, and family life, amongst other considerations. SCIboston's mentors also lead many of our virtual support groups, as well as attend them to provide support to others. If you'd like to hear more about the program or wish to connect with someone, please contact SCIboston's Peer Mentor Coordinator, Diane, at diane@sciboston.org to learn more today.

Click the HERE to watch a video from our Peer Mentors!

To learn more about our other Peer Mentors click HERE!

SCIboston's Back2RI Grant Program

Our Grant Program assists individuals with a Spinal Cord Injury or Disorder (SCI/D) who demonstrate a financial need. These grants can help assist with obtaining either Durable Medical Equipment or Vehicle Modifications up to $4,000
Examples of Eligible Items:
Upgrade and maintenance of wheelchairs, home ramps and lifts, computers, commodes, standing frames, shower chairs/benches, vehicle hand controls, wheelchair locking systems, and more.
To learn more about the eligibility requirements, what our grants cover, and to fill out the application click the button below!

Watch Stacie and Rory tell their story at our recent gala HERE.

Spinal Cord Injury Transition Program

Stacie Selfridge - TRANSITION PROGRAM LIAISON

Stacie oversees SCIboston’s SCI Transition Program, which aims to assist individuals who live in nursing homes to get back to living independently. Stacie brings twenty-plus years of knowledge and experience as an Occupational Therapist to our SCIboston community. We are pleased to announce the SCIboston Spinal Cord Injury Transition Program has had some great successes during it's first two years and we want to continue helping individuals with their independence.

Do you know someone with an SCI that is living in a nursing home? We are looking for new candidates who are motivated to move back into the community.

Please contact info@sciboston.org for more information or to recommend a candidate.

Virtual Support Groups

Join us for one or more of our virtual support groups that meet your needs as an individual, family member, or significant other affected by a spinal cord injury or disorder (SCI/D). Our many virtual groups offer opportunities for open discussion, support, and resources. 
Younger Adult Group
Women's Group
Newly Injured 
Spanish Group
After Dark Groups
Family Groups
SCI/D Discussion Group
And many more!
Click the button to access more information and the zoom links!

Our YouTube Channel

Have you missed one of our recent Saturday Education Series Presentations or one of our virtual community events? Did you know that we upload them to our YouTube channel?
We have presentations on:
NEW VIDEO!  SCI & Mental Health: Challenges and Solutions
Spaulding Adaptive Sports & Boston Area Fitness Programs
Hollister Products and Insurance Reimbursement
Nutrition and Metabolic Changes with SCI/D 
Cooking with Arash
Returning to School After SCI
Adaptive Driving
And so much more!

Click the button below to check them all out!

For Sale/Donated

Are you looking for or do you have Durable Medical Equipment, Assistive Technology, Adapted Vehicles or an Accessible Home for sale or donation?
This month we have:
*SMART DRIVE Accessory*
*Karman Manual Wheelchair*
*2 different Standing Machines*
Wheelchair Hitch Carrier
Kia Soul Ramp Vehicle 
Duet Basic Bicycle
And so much more!
Click the button below to check them all out or submit your item!

Resources

Our resource page was curated by our staff with information provided by our mentors, group leaders, and other members of the SCI community that includes information about:
Caregivers
Getting Back to Work
Housing, Sports & Recreation
Complex Rehab Technology
Transportation
and so much more!
Click the button below to check them all out!
 
 

Community Tidbits

Personal Exoskeletons for Individuals Living with
Paraplegia: Understanding the Why & How

July 18 at 6:30 p.m.

Register in advance for this webinar: https://us02web.zoom.us/webinar/register/WN_p3NO3qbtQkaYKJogwoMPxA#/registration
Participants will understand the goals of personal exoskeletons, what makes someone a good candidate, and the process for obtaining one. Exoskeletons are not suitable for everyone, but can provide amazing health, wellness, and quality of life benefits for those suitable and trained.

Jill Butler is a physical therapist and board certified neurologic clinical specialist. She attended Simmons College for her Doctor of Physical Therapy and practiced primarily with the neurologic population in the Spaulding Rehabilitation network for several years. In 2018, she started as a Clinical Training Manager with ReWalk Robotics. She is passionate about educating clinicians and individuals about the power of personal exoskeletons to improve the lives of individuals living with spinal cord injury and for the past 3 years has worked as the Product Manager for the ReWalk Personal Exoskeleton.

 

Disability History Museum

 

The Disability History Museum hosts a VIRTUAL searchable library, education curricula, and museum exhibits. These programs are designed to foster research and study about the historical experiences of people with disabilities and their communities.

Click Here

 

 
 
 

Did you miss a newsletter? All our past newsletters can be found here:

Newsletter Archive

 

Helpful Resources

United Spinal Association Resources and Webinars

Christopher and Dana Reeve Foundation Resources and Webinars

Model Systems Knowledge Translation Center (MSKTC)

Facing Disabilities: for families facing spinal cord injuries

New Mobility Magazine

Spaulding New England Regional SCI Model System

ReUse DME Website: Refurbished Durable Medical Equipment

 Northwest Regional Spinal Cord Injury System Informative Webinars 

AbleThrive: Curated Content Just for You

Massachusetts Office on Disability 

 

SCIboston
2 Rehabilitation Way  | Woburn, Massachusetts 01801
(617) 952-5643 | info@sciboston.org

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