ID: festive banner with fireworks in the background and text reading: SCIboston, January newsletter, happy new year!
 

Thank You To Our Sponsors

Silver Sponsors

Advanced Wheels   Encompass Health   MobilityWorks   PNPS Nursing   
Spaulding Rehab Hospitals 

Bronze Sponsors

Hollister   Hunts Photo   Journey Forward   Lifeward   Michael Mahoney
Massachusetts Walks Again   Quantum
Bob Nichol, Linda Riley,Robert Mueller, and Bernard Metzger in memory of Karen Zander

A Special Thank You to Our Supporters

Travis Roy Foundation
Craig H Neilsen Foundation
Lenny Zakim Fund
Cummings Foundation

info@sciboston.org                    www.sciboston.org

Our Diversity, Equity, Inclusion, Access, and Belonging (DEIAB) statement can be found here.

 

In this newsletter you will find:

  • It's National Mentoring Month!
  • Upcoming Events! Power of Art Gala and Saturday Education Series 
  • Travis Roy Legacy Grant Program
  • Advocacy Newsletter 
  • Support Groups
  • SCI Transition Program - Hear How The Program Helped Rory
  • *NEW VIDEO* SCIboston YouTube - Adaptive Sports and Fitness
  • Support Groups 
  • Resources
  • Community Tidbits - Adaptive Tennis, Neurological Rehab Webinar, Empower SCI Summer Programs, and DPC Job Opportunity.

We rely on donations, sponsors and grants to fund our peer programs. If we made a difference in your life or that of someone you love, consider a donation to allow us to continue to assist others as we assisted you.  

 

SCIboston is recognized by the IRS as a not-for-profit 501(c)(3) charitable organization. Your donation is tax deductible to the full extent of the law.

 
 

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It's National Mentoring Month!

Thank you to our Peer Mentors who selflessly give their time and offer themselves to help others who need more support.
The world needs more people like all of you!

Looking to Connect with a Peer Mentor?

Are you or a family member looking to connect with one of SCIboston's trained peer mentors? Many people find it helpful, reassuring, and hopeful to talk to a mentor about adjusting to life after a spinal cord injury. Topics of conversation could include getting back to work or school after a sci, adaptive sports, relationships and intimacy, bladder and bowel management, and more. We match individuals with peer mentors based primarily on gender, injury level, age, interests, and family life, amongst other considerations. SCIboston's mentors also lead many of our virtual support groups, as well as attend them to provide support to others. If you'd like to hear more about the program or wish to connect with someone, please contact SCIboston's Peer Mentor Coordinator, Diane, at diane@sciboston.org to learn more today.

Click the HERE to watch a video from our Peer Mentors!

To learn more about our other Peer Mentors click HERE!

 

Upcoming Events

Flyers are clickable.

ID: a colorful flyer background that looks like paint brush strokes. A slightly transparent box in the middle with text that reads save the date for SCI Boston's annual gala. The power of art, and evening of art to celebrate the SCI community. Saturday, March 29, 2025. Boston Marriott Newton
ID: White and Orange background on a square flyer with text. Text: Saturday education series. SCIboston's Peer mentoring program. Saturday, January 25, 2025, 11 AM-12:30 PM EST. If you've been thinking about being paired with a peer mentor, have questions about help him entering works, I would like to become a peer mentor to others, we look forward to having you join this interactive session. You will learn more about the success of SCIboston's long-standing peer mentoring program and how to become involved. You will meet several active peer mentors I will share their experiences of the life-changing impact having a peer mentor had on the recovery and the rewards of giving back to others as a peer mentor. Opportunity for a Q and a with our peer mentors. Click here to join!
 
 

SCIboston's Travis Roy Legacy Grant Program

SCIboston is excited to announce the continuation of its quality of life grant program for individuals with a spinal cord injury or disorder and has renamed it The Travis Roy Legacy Grant Program. To read the full press release click here!

Our Grant Program assists individuals with a Spinal Cord Injury or Disorder (SCI/D) who demonstrate a financial need. These grants can help assist with obtaining either Durable Medical Equipment or Vehicle Modifications up to $5,000

Examples of Eligible Items:

Upgrade and maintenance of wheelchairs, home ramps and lifts, computers, commodes, standing frames, shower chairs/benches, vehicle hand controls, wheelchair locking systems, and more.

To learn more about the eligibility requirements, what our grants cover, and to fill out the application click the button below!

Banner with cartoon drawings of individuals with various abilities. Text logo for SCI Boston advocacy

Happy New Year everyone! With a new year, new legislative session, and new Congress, there will be plenty of opportunities to get engaged and involved in advocacy this year. Make sure you sign up for Advocacy Newsletters so you don’t miss a thing!

Want to improve access to taxis and rideshares, like Lyft and Uber? Participate in a focus group with BraunAbility. Read the full newsletter for more information and email Vita at vita@sciboston.org if interested!

Virtual Support Groups

Join us for one or more of our virtual support groups that meet your needs as an individual, family member, or significant other affected by a spinal cord injury or disorder (SCI/D). Our many virtual groups offer opportunities for open discussion, support, and resources. 
Younger Adult Group
Women's Group
Newly Injured 
Spanish Group
After Dark Groups *Relaunched*
Family Groups
SCI/D Discussion Group
And Nutrition Group
Click the button to access more information and the zoom links!

Watch Stacie and Rory tell their story at our 2024 Gala HERE.

Spinal Cord Injury Transition Program

Stacie Selfridge - TRANSITION PROGRAM LIAISON

Stacie oversees SCIboston’s SCI Transition Program, which aims to assist individuals who live in nursing homes to get back to living independently. Stacie brings twenty-plus years of knowledge and experience as an Occupational Therapist to our SCIboston community. We are pleased to announce the SCIboston Spinal Cord Injury Transition Program has had some great successes during it's first two years and we want to continue helping individuals with their independence.

Do you know someone with an SCI that is living in a nursing home? We are looking for new candidates who are motivated to move back into the community.

Please contact info@sciboston.org for more information or to recommend a candidate.

Our YouTube Channel

Have you missed one of our recent Saturday Education Series Presentations or one of our virtual community events? Did you know that we upload them to our YouTube channel?
We have presentations on:
NEW VIDEO!  Adaptive Sports & Boston Area Fitness Programs
SCI & Mental Health: Challenges and Solutions
Hollister Products and Insurance Reimbursement
Nutrition and Metabolic Changes with SCI/D 
Cooking with Arash
Returning to School After SCI
Adaptive Driving
And so much more!

Click the button below to check them all out!

Resources Page

Our resource page was curated by our staff with information provided by our mentors, group leaders, and other members of the SCI community that includes information about:

Caregivers
Getting Back to Work
Housing, Sports & Recreation
Complex Rehab Technology
Transportation
and so much more!

Click the button below to check them all out!

 

Community Tidbits

Winter Wheelchair/Para Standing Tennis Clinics
South Shore YMCA Emilson 75 Mill St, Hanover, MA 02339
Every Sunday starting January 5, 2025 to May 4, 2025. 
1100am to 100pm. 
Details of sessions
  • Sessions are geared towards Adults and Teens 
  • Wheelchair tennis is for people with a permanent, mobility-related physical disability.
  • Para-Standing Tennis is for people with physical disabilities who play without using a wheelchair. (Focus is on players with limb loss/impairments.)
  • Instructions provided  for Beginners to Intermediate players. 
  • Rackets and sports wheelchairs are available but must be reserved in advance.
  • Players are welcome to bring family and friends to also learn tennis
  • No cost. Beginners welcome!
  • Volunteers needed. Call for details.  We ask that volunteers are USTA Safe Play approved
Junior tennis is back!
January 26, February 23,  March 30 and April 27 are dedicated to Juniors age 18 and under.

Click here for more details.

Empower SCI Summer Intensive Program in Missoula, Montana at University of Montana.

Join Empower SCI for community, activities, and therapeutic experiences all surrounded by the beautiful mountain landscape in Montana. Now accepting applications!

Northeast and Teen Programs also available.

Location: Empower SCI Montana

Dates: 6/8/2025 1:00 PM - 6/15/2025 11:00 AM

Ages: Ages 16 - 99

Availability: This session has openings
Registration will end on 3/31/2025.

For more info click here!

VIRTUAL SYMPOSIUM

After Hospital Neurological Rehabilitation
Meeting the Need

Friday, January 24th 2025 1pm to 3pm EST

The symposium invites outpatient hospital clinics, neuro-rehabilitation facilities, activity based therapy (ABT) centers, and organizations supporting SCI rehabilitation to participate. 

In the 2 hour Zoom Webinar we will do the following:

  • Define, delineate and communicate the crisis in outpatient SCI rehabilitation
  • Discuss and describe current and future solutions
  • Determine how organizations can collaborate to share best practices and ideas
  • Develop strategies to expand access to care including more facilities and funding utilizing private, philanthropic, and governmental resources

To register click here!

Job Opportunity 

Open Date: 10/10/24
Company/Organization Hiring: DPC
Status: Open for Application

Community Organizer

The Disability Policy Consortium (DPC) is an independent organization run by and for people with disabilities that provides advocacy, community-based research, and healthcare ombudsman services across Massachusetts. More than 80% of our staff have disabilities, and our credo is “About Us, By Us”—the belief that when decisions are being made about people with disabilities, they should play a leading role in making them. We are committed to social justice and strive to be a place where all our employees can bring their full selves to work.

DPC is seeking a Community Organizer to support our advocacy efforts and policy work. This organizer will work on a variety of campaigns, but their focus will be on issues relating to access to durable medical equipment. This position works within our Advocacy Department and reports to the Director of Advocacy.

 

Did you miss a newsletter? All our past newsletters can be found here:

Newsletter Archive

 

Helpful Resources

United Spinal Association Resources and Webinars

Christopher and Dana Reeve Foundation Resources and Webinars

Model Systems Knowledge Translation Center (MSKTC)

Facing Disabilities: for families facing spinal cord injuries

New Mobility Magazine

Spaulding New England Regional SCI Model System

ReUse DME Website: Refurbished Durable Medical Equipment

 Northwest Regional Spinal Cord Injury System Informative Webinars 

AbleThrive: Curated Content Just for You

Massachusetts Office on Disability 

 

SCIboston
2 Rehabilitation Way  | Woburn, Massachusetts 01801
(617) 952-5643 | info@sciboston.org

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