info@sciboston.org                    www.sciboston.org

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Hello Friend,

In this newsletter you will find:

Upcoming Events: 

  • After Dark: Men with SCI/D: Becoming A Parent Post SCI, December 8th, 7-8:30PM; Join us to hear from interabled couples (male partners with paralysis) who have had children after SCI. They will share their journeys of conception and parenting while overcoming the hurdles associated with having a spinal cord injury. There will be time for a Q&A. All interabled couples and single individual with SCI/D are welcome. Click here for the Zoom information!
  • SCI/D Discussion Group: Adaptive Winter Sports at Spaulding, December 9, 4 PM; We will have a brief presentation during our SCI/D Discussion Group about the current winter adaptive sports being offered through Spaulding Adaptive Sports, including opportunities for skiing. All are welcome! Click here for the zoom information!
  • Empower Hour, December 15th, 7-8PM; Join the Empower SCI monthly virtual social group for a fun gadget show and tell. Click here for more information and for the zoom link!
  • GBC Virtual Holiday Gathering, December 18th, 11AM-12:30PM; Join us as we wish all the members of the GBC community a joyous holiday season. Wear your ugly sweaters and pajamas, bring some hot cocoa with marshmallows, and share some holiday cheer with us!  Click here for the Zoom information.

If we made a difference in your life or that of someone you love, consider a gift to allow us to continue to assist others as we assisted you.

We rely on donations, sponsors and grants to fund our peer programs.

Helpful Websites

United Spinal Association Resources and Webinars

Christopher and Dana Reeve Foundation Resources and Webinars

Informative Webinars: Living with an SCI

Facing Disabilities: for families facing spinal cord injuries

New Mobility Magazine

Spaulding New England Regional SCI Model System

ReUse DME Website: Refurbished Durable Medical Equipment

 Northwest Regional Spinal Cord Injury System Informative Webinars 

AbleThrive: Curated Content Just for You

If you attended our virtual fundraiser or donated to the GBC in 2020, you may be eligible for a special $300 tax deduction. The GBC is a qualified 501(c) organization. Click here to read the following article for more information. 

Did you miss a newsletter? All our past newsletters can be found here:

Newsletter Archive

 

 

Open Position

Chapter Coordinator

The Chapter Coordinator will oversee several major areas of work for the Chapter. These projects include development (fundraising) activities, financial management and management of the Chapter’s grant programs.

The Chapter Coordinator will also have management responsibility for one or more staff members hired to implement the SCI Transition Program.

The Chapter Coordinator will also work closely with the Peer Mentor Coordinator and Community Involvement Coordinator to oversee the smooth running of Chapter activities and handle miscellaneous requests to the Chapter as they arise. 

If you're interested, please click the button for more information!

 

Advocacy Update

Click the button below for this months advocacy update where you will find information on an upcoming public meeting for wheelchair access on single isle aircraft, and a take action notice for the SCI Model Systems.

Interested in getting notifications about our advocacy efforts or being an advocate on the state or national level? Click here to sign up for email alerts.

 

A Good Read

2022 Consumer Guide

"Adaptive products and adaptive lifestyles go hand in hand. Our annual Consumer Guide shows you the tech — and the techniques — for living fully on wheels.

To personalize our consumer guide, we broke down our annual product listings into six categories and asked a peer from our community to helm each section.  Think of them as guides to the Consumer Guide." Click the button below to continue reading!

 

SCI Watch

Our 2021 Virtual Fundraiser & Awards Ceremony 

Last week we had a special Giving Tuesday event to raise funds for our chapter. During the event we heard testimonials from many of our peers and mentors, we heard from our board members and what the GBC means to them, and we remembered friends we have lost over the last year. We also celebrated this year's recipient of the Elmer Bartels Leadership Award, Dr. Cheri Blauwet, as well as honored Mary Cooper as the first recipient of the Larry Brennan Compassion and Commitment Award. We still have a ways to go to reach our annual fundraising goal of $40,000, if you would like to donate to help us continue to make an impact on the lives of individuals with SCI/D you can donate here. If you weren't able to join us for the live event click the button below to watch it on our YouTube channel!

 
This is a flyer that has the GBC logo at the top. The title: becoming a parent post SCI. The date of Wednesday, December 8, 7 PM-8:30 PM. The description of the meeting: we will have inter-abled couples joining us to tell their journeys about becoming parents after paralysis. There will be a Q&A afterwards. There is a zoom link. If you click on the flyer it will bring you to our event page with a hyper link to join the meeting.
This is a flyer with the GBC logo at the top. Holiday decorations adorn the flyer. The flyer reads: the GBC invite you to our annual virtual holiday gathering. Join us as we wish all the members of the GBC community a joyous holiday season. Saturday, December 18, 11 AM dash 12:30 PM. With a zoom link to join. If you click on the flyer it will bring you to our event page where there will be a hyperlink to join the meeting.
 

Study

Designing an app to improve adherence of pressure relief exercises* for spinal cord injury (SCI) patients

* The GBC is not affiliated with this study. This study is for a thesis of an MIT student. Please contact the student directly.

Eligible participants

Adult SCI patients who use wheelchairs throughout the day and are able to do at least three of their pressure relief exercises of choice throughout the day without any physical discomfort. Participants must possess and regularly use smartphones with access to the internet (type of operating system does not matter). US citizens or green card holders only.

If you meet the eligibility requirements above please click here to learn more.

 

Virtual Discussion Groups

Join us for one or more of our virtual support groups that meet your needs as an individual, family member, or significant other affected by a spinal cord injury or disorder (SCI/D). Our many virtual groups offer opportunities for open discussion, support, and resources. Click the button below to access more information and the zoom links!

For Sale/Donated

Are you looking for or do you have Durable Medical Equipment, Assistive Technology, Adapted Vehicles or an Accessible Home for sale? This month we have:

Invacair PDX Power Chair
Kia Soul Ramp Vehicle 
Concept Rower
And so much more!
 
Click the button below to for more information!

Our YouTube Channel

Have you missed one of our recent Saturday Education Series Presentations or one of our virtual community events? Did you know that we upload them to our YouTube channel? We have presentations on:
MA Medical Cannabis Program(New)
SCI Research Studies(New)
And so much more!

Click the button below to check them all out!

 

Thank you to all of our sponsors!

Greater Boston Chapter of United Spinal Association
2 Rehabilitation Way  | Woburn, Massachusetts 01801
(617) 952-5643 | info@sciboston.org

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