Banner has SCI Boston logo with a beach theme background and the word August in various summer colors
 

A Special Thank You to Our Supporters

Travis Roy Foundation
Craig H Neilsen Foundation
Lenny Zakim Fund
Cummings Foundation

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info@sciboston.org                    www.sciboston.org

 

The SCIboston community is deeply saddened by the recent loses of three special people. 

Midge was a long time SCIboston Peer Mentor and Board Member. She was always a calm, sweet, and positive presence for us all. She will be missed by all who knew her. Here is the link to Midge’s obituary: https://www.bisbeeporcella.com/obituaries/Marion-A-Midge-Dawicki?obId=32311733

Barry Brodil was a Peer Mentor and encouraged others to live life to its fullest, as he did every day. Barry’s humor and bright spirit will be dearly missed. Here is the link to Barry’s obituary: https://www.patriotledger.com/obituaries/pneo0884425

Lurie Pfeffer was a cherished member of SCIboston’s Family Group and an invaluable volunteer. She supported her family and was a friend to all with her calming presence. Here is the link to Lurie’s obituary: https://www.douglassfh.com/obituary/lurie-pfeffer

Our hearts are with both the families of Midge, Barry, and Lurie.

On August 19 at 4 PM there will be a Zoom session with a Grief Counselor. More info to follow.

 

In this newsletter you will find:

  • We Are Hiring!
  • Upcoming Events! SCI Awareness Day at Fenway, SCI Awareness Day at the State House
  • The Impossible Dream 
  • August Advocacy Update
  • Peer Mentor Spotlight: Josh 
  • SCIboston B2RI Grant Program *Grants up to $5000*
  • SCI Transition Program - Hear How The Program Helped Rory
  • Grupo de Apoyo en Español *Nuevo enlace de hora y Zoom*
  • Support Groups 
  • SCIboston YouTube 
  • For Sale/Donations *New Item*
  • Community Tidbits - Disability History Museum and Personal Exoskeletons Webinar 

We rely on donations, sponsors and grants to fund our peer programs. If we made a difference in your life or that of someone you love, consider a donation to allow us to continue to assist others as we assisted you.  

 

SCIboston is recognized by the IRS as a not-for-profit 501(c)(3) charitable organization. Your donation is tax deductible to the full extent of the law.

 
 

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We Are Hiring!

Social Media Coordinator

We are seeking a Part-Time Social Media Coordinator to manage and enhance our social media
presence and ultimately to reach more individuals with spinal cord injury. The ideal candidate will be
well-versed in current social media trends, have a deep understanding of the spinal cord injury
community, and possess the ability to create engaging content that resonates with our audience.

The full job description is below!

Upcoming Events

Flyers are clickable.

Flyer that has baseball stitching for a background, a baseball with two bats in the center. Text Colin join SCI Boston for spinal cord injury awareness day at Fenway park. Red Sox versus White Sox sunday, September 8 at 1:35 PM. Limited-edition hats, tickets purchase. Click on the flyer for more information into purchase tickets.
ID: White and green flyer with image of Dr. Eric Ruby and Senator Mark Pacheco. Text: please join us at the state house for the annual sci awareness month proclamation and presentation. September 18, 2024, 12 -1 PM, Hall of flags, 24 Beacon St., Boston. A collaboration of Massachusetts rehabilitation facilities, consumer organizations, legislators, scientists, researchers, policymakers, and advocates working toward a common goal to increase awareness and funding for SCI cure. Click here to RSVP
 

Impossible Dream Catamaran

Picture of a Group of wheelchair users and non-wheelchair users in front of a docked white catamaran on a cloudy day.

On Monday, July 29, The Impossible Dream catamaran took out a group of SCIboston friends to sail on Boston Harbor. There was a little bit of rain, but that didn't stop any of us sailors from having a great time!

The Impossible Dream is a fully accessible catamaran that is dedicated to raising awareness for barrier-free design and improving the quality of life for disabled persons through sailing. To learn more about The Impossible Dream click here!

Banner with cartoon drawings of individuals with various abilities. Text logo for SCI Boston advocacy

How did issues like wheelchair repair, housing, caregiving, estate recovery and preventing discrimination in health care make out in this legislative session? What’s next? How can you get involved?

Sign up for advocacy emails here or click to read the most recent newsletter. 

Read Our Full Advocacy Update Here 

 

Name: Josh
Injury Level: C4 Complete
Year of Injury: 2017

Mentor Spotlight

Josh was injured at age 23 from a negligent gunshot wound while on active duty in the Army. Josh lives with his amazing wife Kassidy and their two pups. In addition to being a peer mentor, Josh is a support group leader, leading the SCI/D Support Group on Thursday evenings. His humor, lightheartedness, and kindness keep members coming back to the group for more. Josh has experience with AppleiOS, smart home technology, adaptive cycling and gaming, and nonprofit help. In his free time, you can find him making hilarious memes for his Instagram page, creating art, gaming, and taking classes.

Looking to Connect with a Peer Mentor?

Are you or a family member looking to connect with one of SCIboston's trained peer mentors? Many people find it helpful, reassuring, and hopeful to talk to a mentor about adjusting to life after a spinal cord injury. Topics of conversation could include getting back to work or school after a sci, adaptive sports, relationships and intimacy, bladder and bowel management, and more. We match individuals with peer mentors based primarily on gender, injury level, age, interests, and family life, amongst other considerations. SCIboston's mentors also lead many of our virtual support groups, as well as attend them to provide support to others. If you'd like to hear more about the program or wish to connect with someone, please contact SCIboston's Peer Mentor Coordinator, Diane, at diane@sciboston.org to learn more today.

Click the HERE to watch a video from our Peer Mentors!

To learn more about our other Peer Mentors click HERE!

SCIboston's Back2RI Grant Program

Our Grant Program assists individuals with a Spinal Cord Injury or Disorder (SCI/D) who demonstrate a financial need. These grants can help assist with obtaining either Durable Medical Equipment or Vehicle Modifications up to $5,000
Examples of Eligible Items:
Upgrade and maintenance of wheelchairs, home ramps and lifts, computers, commodes, standing frames, shower chairs/benches, vehicle hand controls, wheelchair locking systems, and more.
To learn more about the eligibility requirements, what our grants cover, and to fill out the application click the button below!

Watch Stacie and Rory tell their story at our recent gala HERE.

Spinal Cord Injury Transition Program

Stacie Selfridge - TRANSITION PROGRAM LIAISON

Stacie oversees SCIboston’s SCI Transition Program, which aims to assist individuals who live in nursing homes to get back to living independently. Stacie brings twenty-plus years of knowledge and experience as an Occupational Therapist to our SCIboston community. We are pleased to announce the SCIboston Spinal Cord Injury Transition Program has had some great successes during it's first two years and we want to continue helping individuals with their independence.

Do you know someone with an SCI that is living in a nursing home? We are looking for new candidates who are motivated to move back into the community.

Please contact info@sciboston.org for more information or to recommend a candidate.

New Time and Zoom Link for the Spanish Support Group

The Spanish Group is moving to a new time and will be held every Monday at 5pm. (The previous time was 4pm.) Please note the new zoom link, as well. Our attendees speak Spanish, as well as Portuguese and Portuguese Creole. We welcome all who are interested to attend.

Grupo de Apoyo en Español

Para personas con una lesión de la médula espinal y sus familiares
Día y hora de la reunión: Todos los lunes a las 5:00pm-6:00pm EST
Zoom enlace: https://us02web.zoom.us/j/85120305159?pwd=qneB94q11slebftYUddwZt0rWWK9zq.1

ID de la reunión: 851 2030 5159 Contraseña: 287818
Número de teléfono: 929-205-6099 US (New York)

Virtual Support Groups

Join us for one or more of our virtual support groups that meet your needs as an individual, family member, or significant other affected by a spinal cord injury or disorder (SCI/D). Our many virtual groups offer opportunities for open discussion, support, and resources. 
Younger Adult Group
Women's Group
Newly Injured 
Spanish Group
After Dark Groups
Family Groups
SCI/D Discussion Group
And many more!
Click the button to access more information and the zoom links!

Our YouTube Channel

Have you missed one of our recent Saturday Education Series Presentations or one of our virtual community events? Did you know that we upload them to our YouTube channel?
We have presentations on:
NEW VIDEO!  SCI & Mental Health: Challenges and Solutions
Spaulding Adaptive Sports & Boston Area Fitness Programs
Hollister Products and Insurance Reimbursement
Nutrition and Metabolic Changes with SCI/D 
Cooking with Arash
Returning to School After SCI
Adaptive Driving
And so much more!

Click the button below to check them all out!

For Sale/Donated

Are you looking for or do you have Durable Medical Equipment, Assistive Technology, Adapted Vehicles or an Accessible Home for sale or donation?
This month we have:
*Electric Lift*
*Sunfire Power Wheelchair*
*Easystan Glider*
Wheelchair Hitch Carrier
Kia Soul Ramp Vehicle 
Duet Basic Bicycle
And so much more!
Click the button below to check them all out or submit your item!

Resources

Our resource page was curated by our staff with information provided by our mentors, group leaders, and other members of the SCI community that includes information about:
Caregivers
Getting Back to Work
Housing, Sports & Recreation
Complex Rehab Technology
Transportation
and so much more!
Click the button below to check them all out!
 
 
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Image is a continuation of the above job description

Community Tidbits

Active Project Live

August 6th at 5:30 p.m.

Join KBF for Active Project Live, every other Tuesday at 5:30 pm for a vibrant and inclusive discussion group on Zoom focused on adaptive sports and recreational activities.

Hosted by the Kelly Brush Foundation in collaboration with United Spinal Association, this group provides a platform for adaptive sports enthusiasts to engage in lively discussions about various recreational activities. To enrich our conversations you might hear from experts in the form of Q&A, presentations, storytelling, or panelists.

Click Here to sign up!

 

Virtual Wheelchair Fitness Session

Aug 13 at 06:00 PM

W.O.W. Fitness & Wellness will be offering three free fitness classes each month to help you stay active and feeling great! W.O.W. knows that the secret to achieving your fitness goals is to make fitness FUN! These classes are wheelchair-inclusive but open to anyone who wants to participate – all fitness levels and ability levels are welcome. It’s a welcoming environment and the energy is always high.

Click Here to register for the class.

W.O.W also offers many other virtual exercise classes. For more info click here!

 
 
 

Did you miss a newsletter? All our past newsletters can be found here:

Newsletter Archive

 

Helpful Resources

United Spinal Association Resources and Webinars

Christopher and Dana Reeve Foundation Resources and Webinars

Model Systems Knowledge Translation Center (MSKTC)

Facing Disabilities: for families facing spinal cord injuries

New Mobility Magazine

Spaulding New England Regional SCI Model System

ReUse DME Website: Refurbished Durable Medical Equipment

 Northwest Regional Spinal Cord Injury System Informative Webinars 

AbleThrive: Curated Content Just for You

Massachusetts Office on Disability 

 

SCIboston
2 Rehabilitation Way  | Woburn, Massachusetts 01801
(617) 952-5643 | info@sciboston.org

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