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| In this newsletter you will find: -
A Message From Our Marathon Runner -
*Extended* Get Your Gala Tickets! -
Upcoming Events! April's Saturday Education Series, Red Sox Game -
April's Advocacy Update -
SCIboston YouTube - NEW VIDEO! Restoring Arm and Hand Function with Nerve Transfer Surgery -
Looking to Connect with a Peer Mentor? - SCIboston Grant Program
- SCI Transition Program
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Support Groups *New Group* For Younger Adults -
For Sale/Donations *NEW ITEMS* - Community Tidbits - Get active with these recreation and exercise activities!
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Helpful Resources |
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We rely on donations, sponsors and grants to fund our peer programs. If we made a difference in your life or that of someone you love, consider a donation to allow us to continue to assist others as we assisted you. SCIboston is recognized by the IRS as a not-for-profit 501(c)(3) charitable organization. Your donation is tax deductible to the full extent of the law. |
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| | A Message From
Jeff Kuhl
SCIboston's 2024 Marathon Runner Hello SCI Family and Friends! Thank you all for the continued support and generous donations over the last few weeks! The last 9 weeks have flown by, and it is hard to believe the marathon is just 2 weeks away. Last weekend I completed 2nd of 2 long training runs, coming in at just over 20 miles. Each long run is a new personal record for me, and I am excited (and anxious) to get to race day! In the coming weeks I will be focused on finishing up my training plan, and more importantly, working to cross my fund-raising goal! Thanks again for the support and my family and I look forward to coming to Boston soon! Respectfully – Jeff Donate to Jeff's Marathon Campaign Here! |
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| | | GALA TICKET DEADLINE EXTENDED! We've had such an incredible response that we want to extend the deadline for ticket sales as far as possible to include anyone who would like to attend. Final date for sales is Friday, April 5th. If you have not purchased your Gala tickets yet, there is still time! |
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| | |  This month's advocacy update includes a summary of the MassHealth PCA program budget cut and rally, information on accessible parking, and numerous input opportunities on the local, state, and federal level! Find out how to comment on air travel, emergency preparedness, and Boston City Council’s pregnancy parking initiative. Take our Advocacy Survey
Click the link to
Read Our Full Advocacy Update Interested in getting notifications about our advocacy efforts or being an advocate on the state or national level? |
| Our YouTube Channel Have you missed one of our recent Saturday Education Series Presentations or one of our virtual community events? Did you know that we upload them to our YouTube channel? We have presentations on: Spaulding Adaptive Sports & Boston Area Fitness Programs Hollister Products and Insurance Reimbursement Nutrition and Metabolic Changes with SCI/D Cooking with Arash Returning to School After SCI Adaptive Driving And so much more! Click the button below to check them all out! |
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| Looking to Connect with a Peer Mentor? Are you or a family member looking to connect with one of SCIboston's trained peer mentors? Many people find it helpful, reassuring, and hopeful to talk to a mentor about adjusting to life after a spinal cord injury. Topics of conversation could include getting back to work or school after a sci, adaptive sports, relationships and intimacy, bladder and bowel management, and more. We match individuals with peer mentors based primarily on gender, injury level, age, interests, and family life, amongst other considerations. SCIboston's mentors also lead many of our virtual support groups, as well as attend them to provide support to others. If you'd like to hear more about the program or wish to connect with someone, please contact SCIboston's Peer Mentor Coordinator, Jessika, at jcoromel@partners.org to learn more today. Click the HERE to watch a video from our Peer Mentors! |
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| SCIboston's Back2RI Grant Program Our Grant Program assists individuals with a Spinal Cord Injury or Disorder (SCI/D) who demonstrate a financial need. These grants can help assist with obtaining either Durable Medical Equipment or Vehicle Modifications up to $4,000 . Examples of Eligible Items: Upgrade and maintenance of wheelchairs, home ramps and lifts, computers, commodes, standing frames, shower chairs/benches, vehicle hand controls, wheelchair locking systems, and more. To learn more about the eligibility requirements, what our grants cover, and to fill out the application click the button below! |
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| Spinal Cord Injury Transition Program Stacie Selfridge - TRANSITION PROGRAM LIAISON Stacie oversees SCIboston’s SCI Transition Program, which aims to assist individuals who live in nursing homes to get back to living independently. Stacie brings twenty-plus years of knowledge and experience as an Occupational Therapist to our SCIboston community. We are pleased to announce the SCIboston Spinal Cord Injury Transition Program has had some great successes during it's first two years and we want to continue helping individuals with their independence. Do you know someone with an SCI that is living in a nursing home? We are looking for new candidates who are motivated to move back into the community. Please contact info@sciboston.org for more information or to recommend a candidate. |
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| Virtual Support Groups Join us for one or more of our virtual support groups that meet your needs as an individual, family member, or significant other affected by a spinal cord injury or disorder (SCI/D). Our many virtual groups offer opportunities for open discussion, support, and resources. Younger Adult Group Women's Group Newly Injured Spanish Group After Dark Groups Family Groups SCI/D Discussion Group And many more! Click the button to access more information and the zoom links! |
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| For Sale/Donated Are you looking for or do you have Durable Medical Equipment, Assistive Technology, Adapted Vehicles or an Accessible Home for sale or donation? This month we have: *SMART DRIVE Accessory* *Karman Manual Wheelchair* *2 different Standing Machines* Wheelchair Hitch Carrier Kia Soul Ramp Vehicle Duet Basic Bicycle And so much more! Click the button below to check them all out or submit your item! |
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Resources Our resource page was curated by our staff with information provided by our mentors, group leaders, and other members of the SCI community that includes information about: Caregivers Getting Back to Work Housing, Sports & Recreation Complex Rehab Technology Transportation and so much more! Click the button below to check them all out! |
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| | |  | Join Dianne Vitkus and KBF for Active Project Live, a vibrant and inclusive discussion group focused on adaptive sports and recreational activities. Hosted by the Kelly Brush Foundation in collaboration with United Spinal Association, this group provides a platform for adaptive sports enthusiasts to engage in lively discussions about various recreational activities. Held virtually every other Tuesday at 5:30pm EST, our first session kicks off this Tuesday, April 2. Get ready to engage, share experiences, and discover new possibilities in adaptive sports and recreation. To enrich our conversations you might hear from experts in the form of Q&A, presentations, storytelling or panelists. Stay tuned for exciting topics and guests to be announced soon! zoom link to be emailed to you the morning of! |
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 | SMART-Health – An online, home-based exercise training program for people with a spinal cord injury Lakeshore Foundation is recruiting participants for a study to evaluate the effects of an exercise program on improving pain, fatigue, physical activity, and physical function with people with a spinal cord injury (SCI). The exercise program is delivered remotely and nationwide. Please help us get the word out! Below you’ll find more information about the study, requirements for participants, and content that can be shared in newsletter, emails, or on social media. |
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| | | Did you miss a newsletter? All our past newsletters can be found here: |
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| SCIboston
2 Rehabilitation Way | Woburn, Massachusetts 01801
(617) 952-5643 | info@sciboston.org |
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