info@sciboston.org                    www.sciboston.org

 

Friend,

In this newsletter:

  • Advocacy Update
  • A Good Read!
  • SCI Watch
  • Group Information
  • For Sale/Donations
  • Your Vote Matters!
  • Event Flyers

Upcoming Events: 

  • Virtual Discussion Groups via Zoom! All Meeting Information below. Women's, Nutrition & SCI, Significant Other's, Grupo de Apoyo en Español!, Newly Injured, After Dark: Wives & Girlfriends, After Dark: Men with SCI/D, SCI/D Discussion, and Family Social Hour
  • Virtual Spinal Source: Pressure Mapping, Saturday, October 17th, 11am-1pm, on Zoom. Learn how to protect skin and prevent pressure injuries. The 2-hour Zoom session will include: 
  • 1.   Skin protection in the wheelchair, bed, shower chair and transfers.
    2.   Use and application of Pressure Mapping Technology
    3.   Open conversation for questions, suggestions, helpful tips, etc.
    4.   Zoom format will be used to allow "face-to-face" conversation and sharing. 
    Click here for more information.
  • *NEW* After Dark for Men with SCI/D: Wednesday, October 28th, 7pm-8pm, on Zoom. 
    This group will be a safe and supportive space to discuss intimacy and sex after a spinal cord injury. There will also be opportunities to talk about fertility. This is for Men only with spinal cord injury or disorder.  Zoom information is here!
  • Virtual Fundraiser & Awards Ceremony, Thursday, November 12th, 8-9pm; suggested donation of $25 to access event. Donate here!

Masks!

We have KN95 masks to distribute to our members in need. Due to the limited amount of masks, individuals will be provided masks on a first-come, first-served basis. If you would like to receive free KN95 masks from our Chapter, please email us at info@sciboston.org with the subject line "Masks" and include the following information:

  • First & Last Name of Person with SCI
  • Mailing Address
  • Phone #
  • Injury Level
  • Date of Injury

Please allow a minimum of one week to receive your masks. You can also request masks through the BCIL here!

We do not, and have never, charged for our services. We rely on donations, sponsors and grants to fund our peer programs.

 If we made a difference in your life or that of someone you love, consider a gift to allow us to continue to assist others as we assisted you.

Helpful Websites

United Spinal Association Resources and Webinars

Christopher and Dana Reeve Foundation Resources and Webinars

Informative Webinars: Living with an SCI

Facing Disabilities: for families facing spinal cord injuries

New Mobility Magazine

Spaulding New England Regional SCI Model System

ReUse DME Website: Refurbished Durable Medical Equipment

 Northwest Regional Spinal Cord Injury System Informative Webinars 

AbleThrive: Curated Content Just for You

 

Advocacy

Transportation, medical care and voting are all on this month’s advocacy update. Click the button below for the full monthly advocacy update!

Interested in getting notifications about our advocacy efforts or being an advocate on the state or national level? Sign up here to receive email alerts from our advocacy reps Pam and Chris!

 

A Good Read

Cities for People with Disabilities

You'll be surprised where Boston ranks. Hint: It's not good...

"When searching for a new home, people with disabilities often have a longer and more complicated list of considerations compared with other individuals. In addition to common wish-list items, such as reliable public transportation and diverse entertainment options, people with disabilities also must think about things like the accessibility of facilities or even the cleanliness of the air. In 2020, they’ll also need to consider how well the city is handling COVID-19."

Click the button to read the whole article!

 

SCI Watch

A Netflix original: An American astronaut struggles with leaving her husband and daughter behind to embark on a dangerous mission with an international space crew.

My Take: 

The show was recommended to me because of the genuine and realistic way that they portrayed acquiring a disability and how life changes afterwards. Both for the character, Mike, his family, and his world around him. In the trailers they never mention or show that he becomes a wheelchair user, and they don't highlight that there are other wheelchair users in the show. I would say that they do a pretty good job, better than many others, of portraying what it's like to go from non-disabled, then Life changes in a split second, and now you need to figure out a completely different body. There are a couple of moments where I moaned and groaned, but those moments were fleeting. As far as the rest of the show goes? Hilary Swank, the actress that portrayed Maggie (a boxer who is paralyzed) in Million Dollar Baby plays Mike's wife who is separated from her family for a mission to Mars. I get the feeling that she is in this role to make amends with the spinal cord injury community after her role in Million Dollar Baby. I'd say I accept her apology. Now the show is about a team of astronauts going to Mars. I am no scientist, but I would say that it's only somewhat accurate...there are some things that I would fact check. Overall the show is pretty good, with decent acting, okay direction, believable SFX and sets. It is more about family drama and exploration then anything else, and for that they hit their mark. I'm going to be tough on this one, but it's my personal opinion. You should give it a watch and make up your own mind. If anything, you should give it a watch to support a show that supports disabled actors and portrays disability realistically."

 

You can also read this interview with the show runner in this month's New Mobility here!

I give it 3.5 Vertebrae
Click the button to watch it!
 

Virtual Discussion Groups

Join us for one or more of our virtual support groups that meet your needs as an individual, family member, or significant other affected by a spinal cord injury or disorder (SCI/D). Our many virtual groups offer opportunities for open discussion, support, and resources. Click the button below to access more information and the zoom links!

For Sale/Donation

Do you have Durable Medical Equipment, Assitive Technology, Adapted Vehicles or an Accessible Home for sale? Send us pictures and information about the item(s) to info@sciboston.org and we will post it on our website and social media. *PLEASE NOTE WE ARE NOT THE SELLER AND DO NOT HAVE POSSESSION OF THE ITEMS. WE PURELY POST ITEMS TO CONNECT SELLERS WITH INTERESTED BUYERS.

Click the button below to see what's currently available!

VOTE!

Voting is a fundamental right. One in five people eligible to vote has a disability. The National Coalition for Accessible Voting and United Spinal created Plan Your Vote 2020, a step-by-step plan designed to get you ready and go vote!
 
 
 
 

Greater Boston Chapter of United Spinal Association
2 Rehabilitation Way  | Woburn, Massachusetts 01801
(617) 952-5643 | info@sciboston.org

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