| |  | Friend, On July 26, 1990, former President George H.W. Bush signed into law the Americans with Disabilities Act (ADA). The ADA passed to ensure that people with disabilities have the same rights and opportunities as everyone else. If you are not familiar with the Americans with Disabilities Act or what it has done for those with disabilities, check it out here. The ADA was a monumental achievement for all Americans with disabilities and this year we celebrate its 30th Anniversary! As part of celebrating the ADA each year, the Greater Boston Chapter reflects on our organization's achievements and also determines what else we can do to further improve the rights and lives of individuals in the SCI/D community. This year, due to COVID-19 restrictions, we are unable to celebrate in person like we usually do on Boston's City Hall Plaza. Instead, we invite you to join us in celebrating the ADA by using #thankstotheADA or #ADA30 when you go to any location or establishment that is accessible to you. Visit www.ADAanniversary.org for more ideas on how you can celebrate this year. We still have KN95 masks to distribute to our members in need. Due to the limited amount of masks received, individuals will be provided masks on a first-come, first-served basis. If you would like to receive free KN95 masks from our Chapter, please email us at info@sciboston.org with the subject line "Masks" and include the following information: - First & Last Name of Person with SCI
- Mailing Address
- Phone #
- Injury Level
- Date of Injury
Please allow a minimum of one week to receive your masks. You can also request masks through the BCIL here! We hope you all had a Happy 4th of July! Stay safe and healthy! Sincerely, Heather Wood
Chapter Coordinator
(617) 952-5643 Ryan DeRoche
Digital Media Coordinator
ryan@sciboston.org In this newsletter: Upcoming Events: - *Weekly Virtual Discussion Groups via Zoom! Spinal Rap, Family Social Hour, Significant Other's, Women's, and Grupo de Apoyo en Español! All Meeting Information below.
- This Week's Family Social Hour Topic of Conversation: Adaptive Clothing! Tell us what adaptations your family member has used to make their life easier.
- Next Week's Women's Group Topic of Conversation: Activities of Daily Living (ADLs)
- July 23rd, 2020, 5-6pm, Family Social Hour; We will have a special guest Dr. Curley of Sanphy Podiatry to talk about foot care.
| | | We do not, and have never, charged for our services. We rely on donations, sponsors and grants to fund our peer programs. If we made a difference in your life or that of someone you love, consider a gift to allow us to continue to assist others as we assisted you. | | | | | |  | | | | | Attention! We have received some feedback from a few of our members that select email platforms do not show our emails in their entirety, which might cause you to miss out on important and useful content. To prevent this from happening, check the bottom of our emails and click on "[Message Clipped] View entire message" so that you can see all of our awesome content we share in our weekly reminders and monthly Newsletters! | | | | Advocacy Keep up-to-date on MassHealth public hearings here. Additionally, MassHealth is resuming the workgroups they had started to form before the pandemic hit – one on wheelchair repairs and one on absorbency product quality. These virtual workgroups will function to inform MassHealth of the issues people are experiencing with wheelchairs and absorbency products and to come up with solutions to these problems. If you use a wheelchair or absorbency products and are interested in participating in one or both of these workgroups, please contact Harry Weissman hweissman@dpcma.org or Eviva Khane ekahne@bostoncil.org Virtual Advocacy Series Join United Spinal Association for their 3-part Virtual Advocacy Series in June and July to discuss the challenges of, lessons learned from and disability rights impacted by the COVID-19 pandemic. Also, check our lasts month's Zoom meeting about COVID-19. Among the guest speakers is our very own Chapter Advocacy Representative, Chris Hoeh! Click here for more info! To continue reading this month's Advocacy Update: Click Here! | | | | A Good Read Here are four great articles about the ADA from New Mobility magazine | | | |  | SCI/D Discussion Group Topic: An open discussion about life with spinal cord injury and disorder (SCI/D).
When: Every Thursday, 4:00 PM Eastern Time (US and Canada)
Zoom Meeting Link: Use the same link and
login information every week!
https://us02web.zoom.us/j/86026942288?pwd=
dE5qZTV5dUZ3YUZrbm1BdzE4b3E5UT09
Meeting ID: 860 2694 2288
Password: 531046
Dial by your location:
+1 312 626 6799, US (Chicago)
+1 929 205 6099, US (New York) | | | Virtual Family Social Hour Topic: An open discussion about life with spinal cord injury and disorder (SCI/D) from the family's/friend's/caregiver's point of view. This week's topic of conversation: Adaptive Clothing! Tell us what adaptations your family member has used to make their life easier.
When: Every Thursday, 5:00 PM Eastern Time (US and Canada)
Zoom Meeting Link: Use the same link and
login information every week!
https://partners.zoom.us/j/96785237098
Meeting ID: 967 8523 7098
Dial by your location:
+1 312 626 6799, US (Chicago)
+1 646 876 9923, US (New York) | | | | | | Significant Other's Virtual Discussion Group Topic: An open discussion about life with spinal cord injury and disorder (SCI/D) from a significant other's point of view.
When: Every Tuesday, 5:00 PM Eastern Time (US and Canada)
Zoom Meeting Link: Use the same link and login information every week!
https://us02web.zoom.us/j/86285443842?pwd=SmVUdXgrbCtiRm5xSU1KdzRLajdXQT09
Meeting ID: 862 8544 3842 Password: 473243
Dial by your location:
+1 312 626 6799 US (Chicago) +1 929 205 6099 US (New York) | | | | | Newly Injured Virtual Discussion Group Topic: An open discussion about being newly injured and life with spinal cord injury and disorder (SCI/D).
When: Every Wednesday, 4:00 PM Eastern Time (US and Canada)
Zoom Meeting Link: Use the same link and login information every week!
https://us02web.zoom.us/j/85058002526?pwd=TUZzQUY5SVhDUG5hbnBKWGs4S0YrZz09
Meeting ID: 850 5800 2526
Password: 290281
One tap mobile:
+13126266799 US (Chicago)
+19292056099 US (New York) | | | | | | Grupo de Apoyo en Español Qué: Una discusión abierta sobre todo lo relacionado con la vida con lesiones y trastornos de la médula espinal (LME/D).
Quién: Invitamos a todos los que viven con una LME/D a sus familiares y amigos a que participen. Todos los miércoles a las 2:30 p.m.
Zoom enlace de reunión: ¡use el mismo enlace e información de inicio de sesión todas las semanas! https://us02web.zoom.us/j/83060834598?pwd=L0RjYUFyWlJWbk1MQldRY3ZJZGJIZz09
ID de la reunión: 830 6083 4598
Contraseña: 860470
Número de teléfono: +13017158592 | | | | | Women's Virtual Discussion Group Topic: An open discussion about life with spinal cord injury from a women’s point of view. Topic of the week is “Aging with a Disability”
When: Every Monday, 6:00 PM Eastern Time (US and Canada)
Zoom Meeting Link (Same every week):
https://us02web.zoom.us/j/85287714006?pwd=aUNnenhtVElaVmRzdlVJaWFWVDc3dz09
Meeting ID: 852 8771 4006
Password: 790905
One tap mobile: +1 929 205 6099 US (New York) | | | | | | | | | | For Sale and Donation! Do you have Durable Medical Equipment, Assitive Technology, Adapted Vehicles or an Accessible Home for sale? Send us pictures and information about the item(s) to info@sciboston.org and we will post it on our website and social media. *PLEASE NOTE WE ARE NOT THE SELLER AND DO NOT HAVE POSSESSION OF THE ITEMS. WE PURELY POST ITEMS TO CONNECT SELLERS WITH INTERESTED BUYERS. | | | | Do you or someone you know use APOGEE PLUS "INTERMITTENT CATHETERS" size "14fr 16"? One of our members has a couple boxes and is looking to give them to anyone that can use them. . Contact us here if you weren't interested! | |  | | | "It's a Duet Basic Bicycle (without power assist) for sale. I'm asking $2000 firm for it, and it retails between $6000 and $8000. I just put new tires on it. Pickup is in Boston or Brookline." Please email us with your contact information and we will share it with the seller. | |  | 2014 MV-1 LX Great wheelchair SUV! More storage room, head room, and maneuverability than mini-vans. Short and long ramp options. Buttons for ramp are accessible from both inside and outside. Luxury edition, black leather interior, new radio with Bluetooth. ONLY TWO OWNERS, selling in order to get a van with hand controls. Low miles, 23,500. Driven in Boston and Connecticut. Serviced at Herb Chambers Burlington, records available. Oil changes every 5k. Comfortable bench seat for three additional passengers besides driver and wheelchair. Lots of storage space, including tow hitch. Please email us with your contact information and we will share it with the seller. | | | | | | Tom's Permobil chair C-500 Permobil wheelchair 21" front to back 19" side to side. He wants to donate. Interested party needs to pick it up from donor's house. All it needs is batteries. Please email us with your contact information and we will share it with the seller. | |  | | | Donated Jazzy scooter with charger. Please email us with your contact information and we will share it with the owner. | |  | | | Greater Boston Chapter of United Spinal Association
2 Rehabilitation Way | Woburn, Massachusetts 01801
(617) 952-5643 | info@sciboston.org | | | | | | | | | | | |
