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info@sciboston.org                    www.sciboston.org

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Hello Friend,

In this newsletter you will find:

  • Upcoming events
  • Congratulations to Our 2022 Boston Marathon Runners
  • Advocacy Update
  • A Good Read
  • For Sale/Donations
  • Support Group Information
  • GBC YouTube
  • Community Tidbits 
  • Podcasts
  • Event Flyers

Upcoming Events: 

  • Saturday Education Series: Massachusetts Rehabilitation Commission, May 21, 11 AM – 12:30 PM; Join the representatives from the Massachusetts Rehabilitation  Commission (MRC) to learn about services and programs offered, including Vocational Rehabilitation, Community Living, Protective Services, and Disabilities Determination Services. We will also hear about the mission and vision of the new Office of Individual and Family Engagement. Click here to join the meeting!
  • Virtual Support Groups; Mondays - Thursdays; Join us for one or more of our virtual support groups that meet your needs as an individual, family member, or significant other affected by a spinal cord injury or disorder (SCI/D). Our groups offer opportunities for open discussion, support, and resources. For more information click here!
  • SAVE THE DATE!!! 2ND ANNUAL RODS & MODS FUNDRAISING CAR SHOW, September 18, 2022, 11 AM-3 PM, Fuddruckers in Saugus, MA.; We had such a good time last year we're inviting everyone back again for this fun event! We will showcase an assortment of vehicles including classics, muscle cars, adaptive vehicles, and more. Mark this event on your calendars and keep checking your mirrors for more information in the weeks to come! 

Helpful Websites

United Spinal Association Resources and Webinars

Christopher and Dana Reeve Foundation Resources and Webinars

Informative Webinars: Living with an SCI

Facing Disabilities: for families facing spinal cord injuries

New Mobility Magazine

Spaulding New England Regional SCI Model System

ReUse DME Website: Refurbished Durable Medical Equipment

 Northwest Regional Spinal Cord Injury System Informative Webinars 

AbleThrive: Curated Content Just for You

If you attended our virtual fundraiser or donated to the GBC in 2021, you may be eligible for a special $300 tax deduction. The GBC is a qualified 501(c) organization. Click here to read the following article for more information. 

 

Did you miss a newsletter? All our past newsletters can be found here:

Newsletter Archive

You can also find us on AmazonSmile. You can set your Amazon account (available in the app as well) to donate .5% of all eligible purchases, including Amazon Fresh, to the GBC. Over time it really adds up! Click the AmazonSmile banner below more information.

 

Congratulations to Our 2022 Boston Marathon Runners

Congratulations to Meagan Kearney and Ava Glazier who raised over $11,000 for the Chapter and completed the 26 miles and 385 yards of the 126th Boston Marathon! We are thrilled with their tremendous fund effort and their success on the course. 

Thank you, Meagan and Ava! We will put the funds raised to good use in helping individuals and their families live their best lives with a spinal cord injury or disorder. 

 

Advocacy Update

Click the button below for this months advocacy update where you will find information on Pathways to Employment, Rolling Revolution, President's budget, Roll on Capitol Hill, Model Systems success story, and an upcoming NCART webinar.

Interested in getting notifications about our advocacy efforts or being an advocate on the state or national level? Click here to sign up for email alerts.

 

A Good Read

Accessible Cooking From Scratch

Written by Esme Mazzeo 

 

"Food coloring mishap aside, Gaver found success in the kitchen by confidently embracing the body she has, instead of worrying about what she is unable to do. With limited use of her hands — her joints and muscles are fused because of arthrogryposis — she learned to rely on her mouth for cooking."

Click the button below to continue reading!

 

For Sale/Donated

Are you looking for or do you have Durable Medical Equipment, Assistive Technology, Adapted Vehicles or an Accessible Home for sale? This month we have:
Invacare Bed
Kia Soul Ramp Vehicle 
Concept Rower
And so much more!
Click here to view all the listings!
 

Virtual Discussion Groups

Join us for one or more of our virtual support groups that meet your needs as an individual, family member, or significant other affected by a spinal cord injury or disorder (SCI/D). Our many virtual groups offer opportunities for open discussion, support, and resources. Click the button below to access more information and the zoom links!

Women's Group
Newly Injured 
Spanish Group
SCI/D Discussion Group
And many more!

Our YouTube Channel

Have you missed one of our recent Saturday Education Series Presentations or one of our virtual community events? Did you know that we upload them to our YouTube channel? We have presentations on:
Bowel Health
MA Medical Cannabis Program
Assistive Technology
And so much more!

Click the button below to check them all out!

 

If the newsletter stops here you're missing some great content. View it in it's entirety in your web browser!

 

Community Tidbits

News and Events from the SCI Community and Beyond

 

2022 Schedule

Waypoint Adventures offers adaptive cycling and hiking adventures around Massachusetts. Waypoint also offers adaptive sports equipment rental.  To check out the spring schedule click the button!

 

Virtual Housing Workshop

May 4 at 10am: This workshop will teach you about:
• Types of housing available in the Boston area
• Navigating subsidized and affordable housing
• Conducting a housing search
• Communicating with housing authorities, agencies, and landlords
• Completing applications for state voucher programs
• How to request reasonable accommodations for your disability

 
 

Disability Community Forum

Join us on Wednesday May 11, 2022 from 2:00-3:30pm at Suffolk University Law School 120 Tremont St. Boston MA 02108 to ask City of Boston officials questions and meet neighbors. 

The City of Boston Disability Community Forum is an opportunity to learn about disability accessibility initiatives, and provide input about accessibility priorities.

 
 

Podcasts

Do you listen to a podcast that might interest our community? Send us an email here with a link to the podcast.

The Heumann Perspective

Join Judy Heumann, an internationally recognized bad-ass disability activist in conversation with disabled changemakers and their allies. For all fighting for social justice, these conversations around disability culture, art, entertainment, policy and advocacy are sure to light a rebellious fire under you to fight harder for all people.

Click the image above to listen!

Spotlight (NARIC)

Quadraphonic is a podcast designed to shed light on issues faced by people with disabilities in the live music scene.By raising awareness and communicating with others about our experiences, we hope to enlighten, entertain, educate, and illustrate that everyone has something to contribute to the community in which we belong to.
No matter what one does to make it through, music is our way to transcend. As individuals, and as a phamily of fans, we rise and come together by sharing in the groove.

Click the image above to listen!

 

Event Flyers

 

Thank you to our sponsors!

 

Support also provided by the Lenny Zakim Fund and the Craig H. Neilsen Foundation.

 

Greater Boston Chapter of United Spinal Association
2 Rehabilitation Way  | Woburn, Massachusetts 01801
(617) 952-5643 | info@sciboston.org

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