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Hello Friend,

As a recipient of their Health Promotion and Accessibility For all Grant, we would like to thank the Lenny Zakim Fund for their support. We recently had the honor of attending this year's Award ceremony along with many other organizations that are doing amazing work. If you'd like to view the ceremony click here!

This year we are very lucky to have two runners ready to conquer the annual race to raise awareness for SCI/D and to raise funds for the GBC. Please help them reach their goals by clicking on their pictures below. We wish them both luck in their journey to the finish line and we look forward to cheering for them on the course!

Thank you for you support!

The GBC

In this newsletter you will find:

Upcoming Events: 

  • Saturday Education Series: Estate, Disability, and Tong-Term Care Planning, March 19th, 11AM-12:30PM; Do you have a power of attorney, health care proxy, will, or trust?  When was the last time you reviewed it?  Do you have questions about state and federal disability benefits such as SSDI, SSI, Medicare, and Medicaid? What happens if you need long-term care at home or in a nursing home?  Learn about the importance of a comprehensive estate plan, how to access public benefits, and how to finance the cost of care. Presented by Pamela Greenfield, Esq. from the Greenfield Planning Group, LLC. Click here for the Zoom information!
  • Mass Para-Golfers Association Adaptive Golf Demo Say, Saturday, March 19th, 12PM-4PM; Join the MPGA for adaptive golf lessons and demonstrations at the PGA Tour Superstore located at 210 Andover St., Peabody, MA 01960. For more information contact the MPGA at 508-889-7581 or mpga.club@gmail.com
  • Virtual Support Groups; Mondays - Thursdays; Join us for one or more of our virtual support groups that meet your needs as an individual, family member, or significant other affected by a spinal cord injury or disorder (SCI/D). Our groups offer opportunities for open discussion, support, and resources. For more information click here!

Helpful Websites

United Spinal Association Resources and Webinars

Christopher and Dana Reeve Foundation Resources and Webinars

Informative Webinars: Living with an SCI

Facing Disabilities: for families facing spinal cord injuries

New Mobility Magazine

Spaulding New England Regional SCI Model System

ReUse DME Website: Refurbished Durable Medical Equipment

 Northwest Regional Spinal Cord Injury System Informative Webinars 

AbleThrive: Curated Content Just for You

If you attended our virtual fundraiser or donated to the GBC in 2021, you may be eligible for a special $300 tax deduction. The GBC is a qualified 501(c) organization. Click here to read the following article for more information. 

 

Did you miss a newsletter? All our past newsletters can be found here:

Newsletter Archive

You can also find us on AmazonSmile. You can set your Amazon account (available in the app as well) to donate .5% of all eligible purchases, including Amazon Fresh, to the GBC. Over time it really adds up! Click the AmazonSmile banner below more information.

 

Open Position

Chapter Coordinator

The Chapter Coordinator will oversee several major areas of work for the Chapter. These projects include development (fundraising) activities, financial management and management of the Chapter’s grant programs.

The Chapter Coordinator will also have management responsibility for one or more staff members hired to implement the SCI Transition Program.

The Chapter Coordinator will also work closely with the Peer Mentor Coordinator and Community Involvement Coordinator to oversee the smooth running of Chapter activities and handle miscellaneous requests to the Chapter as they arise. 

If you're interested, please click the button for more information!

 

Advocacy Update

Click the button below for this months advocacy update where you will find information on transportation services, employment, accessible housing and workplace information, and news from United Spinal national about SCI Model Systems, virtual advocacy event, and a new Government Relations Coordinator.

Interested in getting notifications about our advocacy efforts or being an advocate on the state or national level? Click here to sign up for email alerts.

 

A Good Read

When You Feel Your Worst, Dress Your Best

This month we would like to share a blog post from one of our peer mentors, Josh! In this post he talks about the difficulties of finding comfortable, functional, and stylish clothing while maintaining skin integrity as a tetraplegic. He is also an artist and he will be helping us with some graphic design items. So keep an eye out for his work and take a peek at his Instagram that has some great humor and other content relating to living with spinal cord injury.

Click the button below to read his blog post!

 

SCI Watch

Saturday Education Series: SCI and Bowel Health

Dr. Susan Bergman and Spaulding Rehabilitation Hospital Dietitians, Olivia Morgan and Megan Morris to learn about the effects of spinal cord injury on the bowels, how to manage it, and diet recommendations for bowel regularity. We will also hear from a panel of peers with SCI about how they've maintained their bowel care and routine. If you would like to receive the PDF versions of the presentations email us here.

Click the button below to watch the whole recording

 

Virtual Discussion Groups

Join us for one or more of our virtual support groups that meet your needs as an individual, family member, or significant other affected by a spinal cord injury or disorder (SCI/D). Our many virtual groups offer opportunities for open discussion, support, and resources. Click the button below to access more information and the zoom links!

For Sale/Donated

Are you looking for or do you have Durable Medical Equipment, Assistive Technology, Adapted Vehicles or an Accessible Home for sale? This month we have:
Permobil F3
Kia Soul Ramp Vehicle 
Concept Rower
And so much more!
Click the button below for more information!

Our YouTube Channel

Have you missed one of our recent Saturday Education Series Presentations or one of our virtual community events? Did you know that we upload them to our YouTube channel? We have presentations on:
Research Studies
MA Medical Cannabis Program
SCI Research Studies
And so much more!

Click the button below to check them all out!

 

Community Tidbits

News and Events from the SCI Community and Beyond

Webinar

Tuesday, March 8, 2022, from 3:00-4:30 P.M. Eastern Time; Collaborating with Employers and Utilizing Creative Platforms to Connect People with Disabilities to Meaningful Work

Webinar Series

Cross-Sector Partnerships that Create Housing Stability

March 7, 3:00 - 4:30 pm Eastern; Expanded Opportunities with Federal Funding for Housing and Services

March 15, 2:30 - 4:00 pm Eastern; State and Local Partnerships for Housing Stability

NARIC NEWSLETTER

  • Study; Exploring the first pressure injury and characteristics of subsequent pressure injury accrual following spinal cord injury.
  • March 3rd, 2:30 – 4 pm, ET; Webinar: Accessible Swimming Pools and Spas
 

Podcasts

QUADLIFE

Quad Life brings you the daily realities of life with a spinal cord injury. Featuring stories that are often difficult, sometimes funny, and always honest. Our episodes offer a window into the nuanced lives of people with quadriplegia as they age and the people around them. Click on the image above for more information!

WAGS of SCI

Join Elena and Brooke as they dig into topics surrounding life and love after Spinal Cord Injury from their unique perspectives as caregivers. Follow them as they strive to 'Empower Women Supporting Their Partners In Chairs' while educating and promoting awareness surrounding disabilities. Click on the image above for more information!

 

Event Flyers

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Thank you to our sponsors!

Support provided by the Lenny Zakim Fund with their Health Promotion and Accessibility for All Grant.

Greater Boston Chapter of United Spinal Association
2 Rehabilitation Way  | Woburn, Massachusetts 01801
(617) 952-5643 | info@sciboston.org

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