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info@sciboston.org                    www.sciboston.org

 

Hello Friend,

In this newsletter you will find:

  • Upcoming events
  • Advocacy Update
  • A Good Read
  • For Sale/Donations
  • Support Group Information
  • GBC YouTube (New Video)
  • Community Tidbits 
  • Event Flyers

Upcoming Events: 

  • Virtual Support Groups; Mondays - Thursdays; Join us for one or more of our virtual support groups that meet your needs as an individual, family member, or significant other affected by a spinal cord injury or disorder (SCI/D). Our groups offer opportunities for open discussion, support, and resources. For more information click here!

  • Saturday Education Series: Accessible Travel, June 18, 11 AM – 12:30 PM; Join us to learn from wheelchair users within our community who are experienced travelers. We will hear from manual and power wheelchair users who have traveled both domestically and internationally. Learn tips from planning your trip, airline travel, accessibility, and more. There will be ample time for Q&A, so come with questions! Click here to join the meeting!

  • Save the date!! Please join us for the Red Sox vs. Rangers game on Saturday September 3rd 2022 at Fenway Park to kick off Spinal Cord Injury Awareness Month. Mark your calendars and stay tuned for more detailed information about the event and ticket sales. 
  • REGISTRATION IS OPEN!!! 2ND ANNUAL RODS & MODS FUNDRAISING CAR SHOW, September 18, 2022, 11 AM-3 PM, Fuddruckers in Saugus, MA.; We had such a good time last year we're inviting everyone back again for this fun event! We will showcase an assortment of vehicles including classics, muscle cars, adaptive vehicles, and more. Whether you have a vehicle you want to to enter, want to enjoy music and a great burger while checking the show out, or if you would like to sponsor the event click here to register!  

Helpful Websites

United Spinal Association Resources and Webinars

Christopher and Dana Reeve Foundation Resources and Webinars

Informative Webinars: Living with an SCI

Facing Disabilities: for families facing spinal cord injuries

New Mobility Magazine

Spaulding New England Regional SCI Model System

ReUse DME Website: Refurbished Durable Medical Equipment

 Northwest Regional Spinal Cord Injury System Informative Webinars 

AbleThrive: Curated Content Just for You

If you attended our virtual fundraiser or donated to the GBC in 2021, you may be eligible for a special $300 tax deduction. The GBC is a qualified 501(c) organization. Click here to read the following article for more information. 

 

Did you miss a newsletter? All our past newsletters can be found here:

Newsletter Archive

You can also find us on AmazonSmile. You can set your Amazon account (available in the app as well) to donate .5% of all eligible purchases, including Amazon Fresh, to the GBC. Over time it really adds up! Click the AmazonSmile banner below more information.

 

Advocacy Update

Click the button below for this months advocacy update where you will find information on Massachusetts transportation, Community Access Monitors, wages for the disabled, Affordable Connectivity Program, and much more! 

Interested in getting notifications about our advocacy efforts or being an advocate on the state or national level? Click here to sign up for email alerts.

United Spinal Working Groups!

Accessible Parking Working Group 
This working group advocate for the improvement of all areas involving accessible parking including then accessible spots, amount of spots, and enforcement.
Outdoor Access Working Group 
This working group will focus on outdoor access for the SCI/D and wheelchair user community. Working on inclusivity and equality for access two outdoor spaces this group is aimed at advocates that have outdoor access experience.
Emergency Preparedness Working Group ( Ready to Roll Emergency Preparedness) 
This working group will focus on emergency preparedness for the SCI/D and wheelchair user community after a natural or manmade disaster, in an effort to help better prepare for, respond to, and recover from emergencies and disasters. 

 

For more information or to join any of these groups, please contact Steve Lieberman slieberman@unitedspinal.org or Annie Streit astreit@unitedspinal.org. 

 

Feedback Wanted!

The SCI/D community knows how important the correct mobility device is. We also know that customize features on these mobility devices can improve your ability to navigate your community. United Spinal is amplifying our community’s voices so that everyone hears about the challenges you face. They will be taking your stories with them as part of Roll on Capitol Hill next month and beyond. Take a moment to share your story here about your mobility device denials and helping us to make change. Click here to share your story.

 

A Good Read

A human rights movement 'disguised as a coffee shop' employs and empowers people with disabilities

Written by Jonathan Lehrfeld and Ariel Gans

 

Bitty and Beau's Coffee is a new franchise of coffee shops that has quickly taking over the US. They are a shining example of how a business can succeed when they realize the potential of everyone, including persons with disabilities. The Boston location (in Melrose) opened in September of 2021 and has become a destination café because when you visit, the positive atmosphere immediately puts a smile on your face. And their good coffee, smoothies, and snacks are delicious as well! We suggest you take a trip over to 462 Main St., Melrose to get a healthy dose of good vibes and your daily caffeine fix as soon as you can!

Click the button below to read more about what they are doing!

 

Virtual Discussion Groups

Join us for one or more of our virtual support groups that meet your needs as an individual, family member, or significant other affected by a spinal cord injury or disorder (SCI/D). Our many virtual groups offer opportunities for open discussion, support, and resources. 

Women's Group
Newly Injured 
Spanish Group
SCI/D Discussion Group
And many more!
Click here to access more information and the zoom links!
 

For Sale/Donated

Are you looking for or do you have Durable Medical Equipment, Assistive Technology, Adapted Vehicles or an Accessible Home for sale? This month we have:
Invacare Bed
Kia Soul Ramp Vehicle 
Concept Rower
And so much more!
Click the button below to check them all out!

Our YouTube Channel

Have you missed one of our recent Saturday Education Series Presentations or one of our virtual community events? Did you know that we upload them to our YouTube channel?
We have presentations on:
Bowel Health
MA Medical Cannabis Program
Assistive Technology
And so much more!

Click the button below to check them all out!

 

Community Tidbits

News and Events from the SCI Community and Beyond

What's New In Spinal Cord Repair?

June 7 at 4pm: Join Neuroethics Canada for an interactive webinar with experts to discuss the latest in different approaches to spinal cord repair!

Boston Disability Commission Advisory Board Meeting

Wednesday, June 15, 2022, 5:30pm:
Broadcast live on Boston City TV (Comcast 24 / RCN 13 / Verizon 962) and online.

 

Event Flyers

 

Thank you to our sponsors!

 

Support also provided by the Lenny Zakim Fund and the Craig H. Neilsen Foundation.

 

Greater Boston Chapter of United Spinal Association
2 Rehabilitation Way  | Woburn, Massachusetts 01801
(617) 952-5643 | info@sciboston.org

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