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info@sciboston.org                    www.sciboston.org

 

Hello Friend,

In this newsletter you will find:

  • Upcoming events
  • Advocacy Update
  • For Sale/Donations
  • Support Group Information
  • GBC YouTube 
  • Community Tidbits 
  • Spaulding Adaptive Sports and Recreation Summer Programming Flyer
  • Helpful Websites
  • Thank You To Our Sponsors

You can find us on AmazonSmile. You can set your Amazon account (available in the app as well) to donate .5% of all eligible purchases, including Amazon Fresh, to the GBC. Over time it really adds up! Click the AmazonSmile banner below more information.

 

Each Monday in September we will be teaming up with Massachusetts Walks Again for weekly updates from members of our community, legislators, scientists, researchers, policy makers, and advocates working toward a common goal to increase awareness and funding for spinal cord injury research. Keep an eye on our social media pages and your inbox for all the exciting information!
 

Please join us for the Boston Red Sox vs Texas Rangers game on Saturday, September 3rd for Spinal Cord Injury Awareness Day at Fenway Park!

We are thrilled to team up with the Boston Red Sox to kick off Spinal Cord Injury Awareness Month and honor individuals living and thriving with paralysis, along with their families, friends, and caregivers. What better way to bring awareness to the community about SCI than coming together at Fenway for a Red Sox game with an on-field presentation, video, grouped seating, and a limited-edition hat give-away.

The Red Sox have put aside discounted accessible and regular seating to accommodate all abilities. Your ticket purchase includes a special edition Red Sox SCI Awareness baseball hat. We have a limited number of tickets available, so get yours today! 

The flyer below provides links that will give you the option of purchasing a maximum of three accessible tickets (ie: one accessible and two companions) as well as general seating. If you need more tickets or assistance please contact Travis Pollio, from Red Sox ticket sales at tpollio@redsox.com 

Gates open at 2:40pm for the 4:10pm gametime start. Hats will be distributed at Gate B. Come early to see members of the GBC at the 4pm on-field presentation.  

Please note that there is limited accessible seating. In order to accommodate as many wheelchairs as possible we ask you to consider getting your companion seats in front of your seat. We’d like to maximize the number of wheelchairs in the limited accessible spots and appreciate your help with this. We do understand that this may not be not feasible for everyone’s family or personal situations.

If the ticket cost is a barrier to you attending this event, please contact us at info@sciboston.org.

For general questions, contact info@sciboston.org. We are so excited and cannot wait to share this day with you! Go Sox!

 

Trent Theroux has been training hard for his Back to Rhode Island swim from Montauk NY to Misquamicut Beach in Westerly, RI on September 17, 2022, to raise money for the The Greater Boston Chapter of United Spinal Association aka RISE Above Paralysis (RISE). RISE will use 100% of the funds raised to provide durable medical equipment grants to individuals who have suffered a spinal cord injury to help with their recovery.

Click the button for more information!

 

REGISTRATION IS OPEN!!! 2ND ANNUAL RODS & MODS FUNDRAISING CAR SHOW, September 18, 2022, 11 AM-3 PM, Fuddruckers in Saugus, MA.; We had such a good time last year we're inviting everyone back again for this fun event! We will showcase an assortment of vehicles including classics, muscle cars, adaptive vehicles, and more. Whether you have a vehicle you want to enter, want to enjoy music and a burger while checking the show out, or if you would like to sponsor the event click the button to register!  

 

Click the button below for this months advocacy update where you will find information about air travel advocacy, ABLE programs, and much more! 

Interested in getting notifications about our advocacy efforts or being an advocate on the state or national level?
Click here to sign up for email alerts.
 

Our YouTube Channel

Have you missed one of our recent Saturday Education Series Presentations or one of our virtual community events? Did you know that we upload them to our YouTube channel?
We have presentations on:
Bowel Health
MA Medical Cannabis Program
Assistive Technology
And so much more!

Click the button below to check them all out!

Virtual Discussion Groups

Join us for one or more of our virtual support groups that meet your needs as an individual, family member, or significant other affected by a spinal cord injury or disorder (SCI/D). Our many virtual groups offer opportunities for open discussion, support, and resources. 

Women's Group
Newly Injured 
Spanish Group
SCI/D Discussion Group
And many more!
Click the button to access more information and the zoom links!

For Sale/Donated

Are you looking for or do you have Durable Medical Equipment, Assistive Technology, Adapted Vehicles or an Accessible Home for sale? This month we have:
Therapy Table (FREE)
Kia Soul Ramp Vehicle 
Concept Rower
And so much more!
Click the button below to check them all out!
 

Community Tidbits

From NCART: "The National Council on Disability (NCD) has announced it will host a virtual public Roundtable on August 3 from 1:00 PM ET to 3:00 PM ET to promote Medicare coverage of Power Seat Elevation and Standing Systems. This is a very positive development in establishing coverage for this important technology and we thank the NCD for its leadership. We want strong CRT stakeholder attendance to emphasize the pressing need to establish coverage. Advanced registration (see below) is required and everyone is invited to attend."

The two-hour virtual roundtable will include perspectives from Members of Congress, people with mobility disabilities, clinicians who evaluate and prescribe mobility technology, researchers regarding the evidence base, and others regarding the legal and policy implications of coverage. Senators Tammy Duckworth and Marsha Blackburn along with Representative Jim Langevin will be part of the proceedings, as well as various members of the ITEM Coalition workgroup, including NCART.

 

From BCIL: Summer Youth Programs In person and virtual options July 5th to August 19th 2022

Register Now!   About Us: Join the BCIL’s Youth Team for a fun and interactive summer to build your skills for life after high school.

In person and online programs in Dorchester, Chelsea, and Downtown Boston.

What we offer: Preparing for Life after High School: • o Work Skills and Exploration of College/Post Secondary Education. Adulting Skills 101 • o Budgeting, cooking, self-care, relationship building and more! o with community outings

See full summer calendar at https://bostoncil.org/youth-services/youth-events/

Register Now! To learn more and register, or request accommodations email Mary-Kate Wells at mkwells@bostoncil.org

 
 
 

Did you miss a newsletter? All our past newsletters can be found here:

Newsletter Archive

 

Helpful Websites

United Spinal Association Resources and Webinars

Christopher and Dana Reeve Foundation Resources and Webinars

Informative Webinars: Living with an SCI

Facing Disabilities: for families facing spinal cord injuries

New Mobility Magazine

Spaulding New England Regional SCI Model System

ReUse DME Website: Refurbished Durable Medical Equipment

 Northwest Regional Spinal Cord Injury System Informative Webinars 

AbleThrive: Curated Content Just for You

 

Thank you to our sponsors!

 

Support also provided by the Lenny Zakim Fund and the Craig H. Neilsen Foundation.

 

Greater Boston Chapter of United Spinal Association
2 Rehabilitation Way  | Woburn, Massachusetts 01801
(617) 952-5643 | info@sciboston.org

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